『Who Gets Counted in Health Data? | Lisa Marceau | The Signal Room』のカバーアート

Who Gets Counted in Health Data? | Lisa Marceau | The Signal Room

Who Gets Counted in Health Data? | Lisa Marceau | The Signal Room

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概要
 Send us Fan Mail This episode explores health data equity by asking who is missing from the research, records and models that clinical AI now depends on. Lisa Marceau is the founder and president of Alpha Millennial Health, and co-founder of the postpartum digital health company Joyuus. Her work includes more than 50 peer-reviewed publications as author or co-author. She joins Chris Hutchins, Founder and CEO of Hutchins Data Strategy Consultants, to examine the infrastructure, governance and research questions that decide whether a model rests on trustworthy foundations. What We Cover Lisa draws on decades of clinical research, including studies in which identical case presentations led to different diagnoses depending on the patient. In cardiovascular disease, women were more often diagnosed with depression than men with the same symptoms, delaying treatment. She argues that data quality and data governance questions about ownership, use and representation must come first, because equity follows when those are solved. The conversation also covers maternal care deserts and the stale or ghost data that AI tools can pull into answers. Key Takeaways Every project should begin with a clear question, followed by a check on whether the available data can actually answer it. When a population is missing, teams should decide whether to build that data before running a model. AI works best as infrastructure, added only when it makes a defined product better, faster or more efficient. Health system leaders evaluating a vendor should ask what problem it solves, what value it brings and what risk it carries for users and the organization. Frameworks and Tools Lisa describes Joyuus, an evidence-based software platform covering mental, physical, social and real-world health across the 12 months after birth. Postpartum depression was its first use case. She co-founded it with Dr. Allison Bryant of Mass General Brigham after asking mothers and providers what was missing. She also discusses the NIH Small Business Innovation Research program and HIPAA risks when AI scrapes data that should have been archived. Chapters 00:00 Welcome and meet Lisa Marceau01:02 From clinical research to entrepreneurship03:28 Who is represented in health data?07:13 The research gaps behind clinical outcomes09:45 Ask the question before collecting the data11:30 Data quality, governance and equity13:49 Geography, culture and access to care16:29 Women's health across the lifespan19:29 AI and the problem of outdated evidence24:09 Joyuus and the postpartum care gap27:29 Earlier support beyond the clinic29:41 Mental health as whole-person care34:43 Social connection and new data36:34 NIH funding and building a viable company39:23 When AI starts referring to AI42:56 Treat AI as infrastructure46:54 The cost of building without a clear purpose48:55 Questions leaders should ask before investing51:27 Breaking the System and connecting with Lisa About Lisa Marceau Lisa Marceau spent 23 years with a clinical research organization, serving as an executive leader for more than a decade before its acquisition by a Fortune 25 insurer. Her book is Breaking the System: How Digital Innovators Shape the Future of Health Care. Related Resources Episode page: https://signalroompodcast.com/episodes/health-data-bias-trustworthy-ai Alpha Millennial Health and Lisa Marceau: https://www.alphamhealth.com/about Joyuus: https://www.joyuus.com/ Lisa Marceau on LinkedIn: https://www.linkedin.com/in/lisamarceau Breaking the System: How Digital Innovators Shape the Future of Health Care: https://www.amazon.com/dp/163489829X NIH SEED and small business funding: https://seed.nih.gov/ Beneath the Signal, Chris's book on the human work behind trusted data and responsible AI in healthcare: Get it on Amazon The Signal Room is featured in Feedspot's Best AI in Healthcare Podcasts, 2026: https://podcast.feedspot.com/ai_health_podcasts/Support the showAbout The Signal Room: The Signal Room is a podcast and communications platform exploring leadership, ethics, and innovation in healthcare and artificial intelligence. Hosted by Christopher Hutchins, Founder and CEO of Hutchins Data Strategy Consultants. Leadership, ethics, and innovation, amplified.Website: https://www.hutchinsdatastrategy.com LinkedIn: https://www.linkedin.com/in/chutchins-healthcare/ YouTube: https://www.youtube.com/@ChrisHutchinsAiBook Chris to speak: https://www.chrisjhutchins.com
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