There isn’t a greeting card for every type of grief. Dr. Ken Doka joins the podcast in this episode to talk about anticipatory and disenfranchised grief. Before death even occurs, people are grieving - anticipating the loss of identity, functional ability, roles, and relationships as well as the actual loss that comes with death itself. This kind of grief is felt by both the person who’s dying and the caregivers and family. Disenfranchised grief occurs when the relationship with the deceased person wasn’t one that’s recognized by society, and can't be publically mourned. Ex-spouses, abusive and estranged relationships can all be situations of disenfranchised grief. It can be difficult to find support for grief like this, making the griever feel isolated. Disenfranchised grief can be more complicated than grief related to healthy and close relationships.

If you need information about grief, check out the Hospice and Grief Info section of the Hospice Foundation of America’s website. Website: hospicefoundation.org Research on grieving: hospicefoundation.org/research-on-grief-and-grieving Grief and other types of loss: hospicefoundation.org/grief-and-other-types-of-loss Facebook: www.facebook.com/hospicefoundation Instagram: www.instagram.com/hfahospice X: x.com/hfahospice

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Social Worker Rosie Gaston talks about getting back to the basics of what matters most to start an advance care plan. Reflecting on values and beliefs is a great starting place. The next step is having conversations with people who matter most to us (along with healthcare providers) to communicate the kind of care we want when our bodies begin to shut down, and what embodies quality of life. When should we make an advance care plan? Rosie recommends anyone over 18 make an ACP and revisit it whenever there’s a life change. End of life wishes change and ACP should change to stay in alignment with who we are. Getting a life-altering or serious diagnosis, changing marital status, or having a change in healthcare provider are all milestones where review of an advance care plan should happen. Have the conversations early, have them often.

Connect with Rosie Gaston, MSW, LICSW, APHSW-C: www.ABetterEnding.org Socials for Rosie Gaston: IG

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com

Social media: Facebook Twitter Instagram LinkedIn

Email: helen@theheartofhospice.com

More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.

Hospice Nurse Julie McFadden is using TikTok to teach over 1 million followers what death really looks like. As a nurse with 15 years of experience in end of life care, she’s seen all the ups and downs of community-based bedside hospice care. Julie also spent years working in ICU, and learned the intense needs of the dying. Her book Nothing to Fear: Demystifying Death to Live More Fully prepares readers for death and dying, with stories interwoven throughout. Her newest book is The Nothing to Fear Journal: Questions and Reflections for Demystifying and Preparing for the End of Life. The journal has four sections that give prompts to help the user’s writing process. The sections cover anything and everything related to dying, including beliefs and fears, how to have end of life conversations, ways to ask for help, and practical tips for planning your own end of life experience. Who should read the books? Hospice Nurse Julie says they’re for anyone who’s going to die.

Links to Hospice Nurse Julie’s book, journal, socials, and website: Nothing to Fear The Nothing to Fear Journal https://www.hospicenursejulie.com/ https://www.instagram.com/hospicenursejulie https://www.tiktok.com/@hospicenursejulie https://www.youtube.com/@hospicenursejulie https://www.facebook.com/people/Hospice-nurse-julie/100077937666311

Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. And we believe you deserve to get good hospice care. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. Book a session with an expert Hospice Navigator at theheartofhospice.com.

Connect with The Heart of Hospice Podcast and host Helen Bauer

Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast

Podcast host Helen Bauer is a great addition to your event or conference! For speaking inquiries, send an email to helen@theheartofhospice.com.