Seth D. Ginsberg: Not just every patient’s friend, now every PEP’s Inspiration!
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Seth D. Ginsberg: Not just every patient’s friend, now every PEP’s Inspiration!
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In this episode, Seth D. Ginsburg, co-founder of Creaky Joints and the Global Healthy Living Foundation (GHLF), shares his journey from patient advocate to industry leader. Driven by personal and family experiences with arthritis, Seth built a community that now reaches millions, championing a human-centred approach rooted in empathy and trust.
Seth explains why effective patient engagement demands long-term relationships rather than short-lived campaigns. He calls on professionals to build genuine bridges between patients and the healthcare industry, arguing that authentic engagement is "good ethics, good science, and great business." Finally, he tackles the industry's biggest challenges: avoiding performative advocacy, proving business value to leadership, and ensuring patient insights translate into real-world changes in protocols and access pathways.