Join us as I speak with Jordan Casey, Victoria Casey and a fellow CDH mom Angela Morse about the IEP process. We discuss your rights as a parent and the appropriate language to use to ensure your voice will be heard as you advocate for what is best for your child.

There is an accompanying powerpoint that can be found here: https://docs.google.com/presentation/d/1PuRvwokZFcU_sXp06qvtHtbwkAEYrwxa/edit?usp=sharing&ouid=115294528082836604297&rtpof=true&sd=true.

Ashley Ebanks, nurse practitioner (NP) from the pediatric surgery care team at Children's Memorial Hermann shares some helpful tips regarding care coordination, even answering the difficult questions surrounding when to call your pediatrician and when to call your surgery team.

We’re thrilled to welcome Dr. Matthew Harting from Children's Memorial Hermann and the University of Texas, in Houston TX.

This episode is a must-listen for every family who has ever faced the daunting questions: “Where should we deliver our CDH baby?” “How do we choose the right care team?” “What questions should we be asking?”

Dr. Harting brings expert insights, compassion, and clarity to one of the most critical decisions families can make on their CDH journey. Tune in, feel supported, and get empowered with the knowledge you need.

On this episode 2 CDH loss mamas share their journeys of loss and the difficult decision to try again. Whether you have lost a child to CDH or you know someone who has this episode is for you. Kirby and Sarah share with raw honesty what was helpful, what was not so helpful and everything in between. You will smile and you will shed a few tears, but ultimately you will be in awe of the strength and resilience of these two mothers and the bond they will always have with their babies.

Listen in as I chat with Kelsey White, CDH Mama X 2. Kelsey shares her unbelievable journey that includes being a mommy to CDH Angel Avett and CDH Survivor Anders. Kelsey has faced the worst thing imaginable not once but twice and has come out with the most beautiful outlook on life. You will be blessed, I know I am.

On this episode I talk with Kristin and Tom Polizzi, parents to CDH Angel Charlie and Founders of Charlie's Warrior of the Angels. You will laugh and you will cry but mostly you will be in awe of these to amazing people. They have endured unimaginable tragedy yet they still find ways to bless others all while honoring their warrior son and his battle against CDH.

On this episode I talk with Nicoletta, CDH mom and founder of Healthcare Redefined. As both a CDH mom and a board certified patient advocate Nicoletta understands the overwhelming feelings of this diagnosis coupled with an extensive NICU stay and care coordination between multiple specialists. She shares how her company could help you navigate this journey!

On this episode I chat with Dr Keijzer who is a pioneering researcher in the field of pediatric surgery and congenital anomalies, with a particular focus on congenital diaphragmatic hernia (CDH) and abnormal lung development.

His cutting-edge research delves into the mechanisms of normal and abnormal lung development due to CDH, with the ultimate goal of developing a prenatal therapeutic intervention to improve the outcomes for babies born with this condition.

Dr Keijzer shares his research and even answers the questions I know are bothering all CDH families when we first get diagnosed... Did I cause this? What could I have done differently?...