RARE MAMAS RISING- EPISODE 54

Hoping Through the Holidays

Christmas is the season of hope. But hope can be complicated for rare disease parents navigating exhaustion, medical uncertainty, chronic stress, and the ache of unanswered prayers. In this episode of Rare Mamas Rising, we explore what hope really looks like for rare disease parents and caregivers during a season that can feel both beautiful and painfully complicated. This episode gently unpacks the realities of hoping in the hard: hope in the waiting, hope after disappointment, hope when you're exhausted, and hope when you're scared to try again. It offers reflections on why hope is an action we choose, how it keeps us moving in the world of medical parenting, and the surprising ways hope can transform us even before our circumstances change. For every rare caregiver navigating uncertainty or heaviness this time of year, this conversation creates space to reconnect with hope.

Links & Resources Mentioned:

For more thoughts on Hope, check out Nikki's new book, Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease. Order the book today at the links below:

• Amazon
• Apple Books
• Barnes & Noble
• Bookshop.org
• Books-A-Million
• IndieBound
• Indigo
• Kobo
• Porchlight

Book Info: www.raremamas.com/book

CONNECT WITH NIKKI

Facebook

https://www.facebook.com/RareMamas1/

Instagram

https://www.instagram.com/Rare_Mamas/

Website

https://raremamas.com/

Email

info@raremamas.com

RARE MAMAS RISING- EPISODE 53

Rhythms of Rising and Recovering

As rare mamas, we're no strangers to effort. We plan, advocate, and persevere through every season. The calm seasons are fleeting, the storms arrive unannounced, and balance often feels impossible. So maybe it's time to stop waiting for life to slow down, and instead, learn to build recovery into the cracks and spaces of our real lives. In this episode, Nikki explores what it means to rest between the rising, to create a rhythm of recovery within the chaos, to stop pushing through every warning sign from our bodies, and to begin listening to what we truly need. Because maybe the goal was never perfect balance. Maybe it's learning to breathe in the middle of the unbalanced—to stop waiting for life to change, and instead, change how we move through it.

Links & Resources Mentioned:

Order the Rare Mamas book today at the links below:

• Amazon
• Apple Books
• Barnes & Noble
• Bookshop.org
• Books-A-Million
• IndieBound
• Indigo
• Kobo
• Porchlight

Book Info: www.raremamas.com/book

CONNECT WITH NIKKI

Facebook

https://www.facebook.com/RareMamas1/

Instagram

https://www.instagram.com/Rare_Mamas/

Website

https://raremamas.com/

Email

info@raremamas.com

PODCAST INFO

podcast@raremamas.com

RARE MAMAS RISING- EPISODE 52

Rare Mamas Book Release + A Special Reading from the Introduction

Today is the day! Nikki's new book, Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease, is officially here. In this very special episode, Nikki celebrates release day by sharing the heartfelt introduction, giving you a first look at the hope, strength, and sisterhood at the heart of Rare Mamas.

This book is a lifeline for rare moms, rare disease parents, and caregivers who are navigating the overwhelming and often isolating rare disease journey—whether you're just receiving a diagnosis or years into the caregiving trenches. If you've ever felt unseen, overwhelmed, or unsure of the path ahead, Nikki's hope is that this book and today's episode provide you with the strategies, strength, support, and sisterhood to rise to the call of rare parenting.

Order the book today at the links below:

• Amazon
• Apple Books
• Barnes & Noble
• Bookshop.org
• Books-A-Million
• IndieBound
• Indigo
• Kobo
• Porchlight

Book Info: www.raremamas.com/book

Nikki's taken her lived experiences and hard-won wisdom from over a decade and poured them into a compassionate and actionable guide to help mothers navigate the complexities of rare disease parenting while finding strength, hope, and community. Inside the book, you'll learn how to:

• Adopt the right mindset for the journey ahead
• Advocate with confidence and diplomacy
• Navigate complex medical, educational, and financial systems
• Discover practical strategies for daily challenges
• Feel capable and empowered to make decisions
• Build a circle of support you can count on
• Balance caregiving with your own well-being
• Find strength in sisterhood and shared wisdom
• Hold onto hope while facing the unknown
• Rise to the call of rare parenting

CONNECT WITH NIKKI

Facebook

https://www.facebook.com/RareMamas1/

Instagram

https://www.instagram.com/Rare_Mamas/

Website

https://raremamas.com/

Email

info@raremamas.com

PODCAST INFO

podcast@raremamas.com