In this episode, Guin and her mother, Jill Salas, join PHACE Syndrome Community program manager Moureen Wenik to share a powerful story of diagnosis, resilience, and advocacy. They reflect on Guin's journey from complex medical challenges in infancy to becoming a college athlete and aspiring health care professional. The conversation also explores the vital role of family support, patient communities, research, and self-advocacy in helping people with PHACE Syndrome find answers and shape better care. Their message is clear: lived experience can drive meaningful change, and no family has to navigate a rare condition alone.

This episode is presented by Palvella Therapeutics. Although Palvella Therapeutics provided funding for this PeDRA Pearls Podcast, the contents of the podcast were developed independently by PeDRA. Learn more about Palvella Therapeutics.

In this bonus episode of PeDRA Pearls, Carrie Coughlin, MD, MPHS, is joined by a panel of experts to explore how quality improvement and implementation science can help clinicians translate evidence into better, more sustainable care in pediatric dermatology. Through practical examples, Larry Eichenfield, MD, Joanna Tu, MD, and Enyo Ablordeppey, MD, MPH, discuss patient safety, dissemination, implementation and de-implementation, and strategies to identify barriers, measure outcomes, and support lasting change. Listeners will gain ideas for launching projects at any scale—from focused improvements within a clinic to broader system-wide initiatives—and for adapting solutions to their local context.

Through a special collaboration, PeDRA and Lilly have released a new funding opportunity to support healthcare improvement (HCI) initiatives related to adolescent atopic dermatitis (AD). With an application deadline of September 30, 2026, this new program may fund up to two projects, each with a budget of up to $450,000. Learn more and apply.

In this episode, Laura Douglas, Senior Manager of Grants and Impact at the Arthritis National Research Foundation (ANRF), discusses the importance of funding early-career investigators and advancing pediatric arthritis and autoimmune disease research. Learn how ANRF and PeDRA are partnering through the Rheum for Kids grant to support innovative research at the intersection of rheumatology and dermatology. Click here for more information about the grant, and here for information about ANRF.

This episode is presented by Disc Medicine. Although Disc Medicine provided funding for this PeDRA Pearls Podcast, the contents of the podcast were developed independently by PeDRA. Learn more about Disc Medicine.

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