POTS is Not Going Away: What 23 Years of Research Actually Tells Us | Dr Satish Raj & Kate Bourne
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POTS is Not Going Away: What 23 Years of Research Actually Tells Us | Dr Satish Raj & Kate Bourne
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For decades, patients with POTS have been told the same thing - it'll go away. You'll grow out of it. Just wait.
The research tells a very different story.
In this episode of Paws on Point, Tim sits down with Dr Satish Raj - cardiologist, POTS researcher, and professor at the University of Calgary - and Kate Bourne, MD/PhD candidate at the University of Calgary's Cumming School of Medicine and POTS patient herself - to discuss the most comprehensive long-term POTS outcome study ever conducted.
With a median follow-up of 23 years, their research published in the Journal of Internal Medicine is the longest known study of its kind. And the findings are clear - 98% of participants continued to experience POTS symptoms decades after onset. Only 2% reported being fully recovered.
This episode covers:
- Why POTS is a lifelong condition for the vast majority of patients
- The average diagnostic delay of 5 years - and why it's still happening
- The psychiatric myth - what the research actually shows
- Why treatment can improve quality of life even without an FDA approved drug
- The comorbidities that predict worse long-term outcomes
- How service dogs are changing daily life for POTS patients
- What patients can do when their doctor doesn't recognise POTS
- Where POTS research is heading next
Kate brings something rare to this conversation - the lived experience of a 12 year diagnostic delay, combined with the scientific credibility of someone who has dedicated their career to understanding the condition that changed her life.
This is the episode POTS patients, their families, and their healthcare providers need to hear.
🐾 Paws on Point is the podcast of Pawsabilities Service Dog Society - amplifying credible voices in the service dog and invisible illness community.
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