『Neuroshambles』のカバーアート

Neuroshambles

Neuroshambles

著者： Mark Allen
無料で聴く

このコンテンツについて

A fortnightly podcast about the ludicrous realities of being a parent of neurodivergent kids. Lapsed comedian Mark Allen has three kids - all diagnosed autistic with ADHD. Each episode, he swaps stories with his guests about the challenges they face dealing with seemingly simple events, such as birthday parties, holidays, mealtimes, and leaving the house.

Copyright 2023 All rights reserved. 人間関係 子育て 心理学 心理学・心の健康 衛生・健康的な生活
エピソード
  • How autistic is your child? | Kieran Rose

    How autistic is your child? | Kieran Rose
    2025/12/03
    This week, Mark is joined once again by the brilliant Kieran Rose, AKA The Autistic Advocate – writer, educator, and parent of three neurodivergent children. Together, they take a deep (and sometimes uncomfortable) dive into one of the most contentious topics in neurodiversity parenting: labels. What do we mean when we describe someone as “severely autistic”? Why is it so hard to explain what being autistic actually means? And how useful (or harmful) are terms like high-functioning, low-functioning, profound autism, or even Asperger’s? In a wide-ranging and compassionate chat, Mark and Kieran explore how complex, deeply personal and often contradictory this topic is - both for parents and for autistic people themselves. What starts as a provocative question ends up as a fascinating conversation about diagnosis, co-occurring conditions, identity, education, eugenics, power, and prejudice. Not one to miss. Make a cuppa, maybe two - this one’s long. But worth it. 📍 CHAPTER TIMESTAMPS (Estimated): 00:00 - Intro: Meet Kieran Rose 04:30 - Life in a Fully Neurodivergent Household 08:00 - Topic of the Week: How Autistic Is Your Child? 12:00 - Labels, Bias, and the Stigma Around Autism 18:00 - High vs Low Functioning: Where It Comes From 23:00 - What Even Is Autism? 28:30 - The Flawed Legacy of Asperger’s 35:00 - Identity vs Diagnosis 42:00 - DSM-5 Levels of Autism: Why They Don’t Work 49:00 - Profound Autism and The New York Times Article 55:00 - A Counterpoint: The Voices We Don’t Hear 1:00:00 - Co-occurring Conditions and the Real Source of Needs 1:07:00 - Clinical Labels vs Lived Experience 1:14:00 - Mark’s Imposter Syndrome as an Autism Parent 1:18:00 - What’s the Alternative? 1:23:00 - Final Thoughts: Humanising, Not Diagnosing 1:27:00 - Neurodiversity Champions 1:33:00 - Tiny Epic Wins 1:39:00 - “What the Flip?” Moments 1:43:00 - Wrap-up & Where to Find Us 🔗 LINKS TO STUFF WE MENTION IN THIS EPISODE: Kieran Rose website - https://theautisticadvocate.com/ Eugenics - https://www.newscientist.com/definition/eugenics/ Asperger Syndrome - https://www.autism.org.uk/advice-and-guidance/what-is-autism/the-history-of-autism/asperger-syndrome Hans Asperger - https://en.wikipedia.org/wiki/Hans_Asperger Lorna Wing - https://www.autism.org.uk/what-we-do/news/lorna-wing-an-autism-hero DSM-5 - https://en.wikipedia.org/wiki/DSM-5 PDF Download of DSM-5 - https://ia800707.us.archive.org/15/items/info_munsha_DSM5/DSM-5.pdf New York Times article: The Autism Spectrum Is Too Broad - https://www.nytimes.com/2025/10/16/opinion/autism-diagnosis-category-stigma.html Greta Thunberg - https://www.bbc.co.uk/news/world-europe-49918719 What is monotropism? - https://www.autism.org.uk/advice-and-guidance/professional-practice/what-is-monotropism Ehlers Danlos Syndromes - https://www.nhs.uk/conditions/ehlers-danlos-syndromes/ Communication First - https://communicationfirst.org/ Autism Central - https://www.autismcentral.org.uk/ Kieran Rose Animated Guide to Monotropism - https://youtu.be/qUFDAevkd3E?si=diwlbe4AHRcxfjQF Kieran Rose Animated Guide to The Double Empathy Problem - https://youtu.be/qpXwYD9bGyU?si=7bnGR2UsrCgLa_hL KIERAN'S HOMEWORK Kieran Rose Blog: Autism, it’s Labels and the Language of Pathologising Rhetoric - https://theautisticadvocate.com/autism-its-labels-and-the-language-of-pathologising-rhetoric/ Sunday Times article: Extra time in exams ‘unhealthy’ for children with ADHD and autism - https://www.thetimes.com/uk/education/article/extra-time-exams-unhealthy-children-adhd-autism-k820s56zh TES magazine article: Sami Timimi: Why ‘invented’ SEND labels are disabling pupils - https://www.tes.com/magazine/teaching-learning/general/sami-timimi-interview-problems-with-send-diagnosis-adhd-autism Yahoo News: Badenoch says motability cars not for people with ADHD - https://uk.news.yahoo.com/badenoch-motability-cars-not-people-135341300.html?guccounter=1 📣 CONTACT US 🌐 Website: www.neuroshambles.com 📧 Email: hello@neuroshambles.com 📸 Instagram: @neuroshambles 🎵 TikTok: @neuroshamblespod 📘 Facebook: Neuroshambles 🧵 Threads: @neuroshambles 🎙️ CREDITS 🎶 Theme music by Skilsel on Pixabay: pixabay.com
    続きを読む 一部表示
    1 時間 55 分
  • Kids refusing medical help | Michelle Parton

    Kids refusing medical help | Michelle Parton
    2025/11/19

    This week, Mark is joined by Michelle Parton – a long-time Neuroshambles listener and parent of two neurodivergent children. They explore one of the more baffling challenges of raising our kids: why do so many of them flat-out refuse medical assistance?

    From hiding lava lamp injuries to meltdown-inducing blood tests, Mark and Michelle swap tales of their kids’ iron-willed resistance to all forms of treatment – even when they’re clearly in pain, bleeding, or itching uncontrollably. Together, they explore the many reasons this might be happening – from sensory issues and PDA to past trauma, masking, and a fundamental lack of trust in strangers in latex gloves.

    It’s funny, cathartic, at times heartbreaking – definitely one for anyone who’s ever tried (and failed) to administer Calpol to a deeply suspicious neurodifferent child.

    ⸻

    CHAPTER TIMESTAMPS (Estimated):

    00:00 – Intro & Meet the Guest: Michelle Parton

    03:00 – Topic of the Week: Refusing Medical Help

    08:00 – Kids hiding injuries

    13:00 – Dysregulation about the prospect of going to the doctor

    17:30 – Trust issues with medical professionals

    23:00 – Lyme disease and the unholy nightmare of blood tests

    29:00 – Trying to administer medication

    35:00 – The impact of sensory overwhelm: Plasters, creams & the taste of medication

    42:00 – The added complication with PDA kids

    47:00 – The role that masking might play

    54:00 – How alexithymia and interoception can influence things

    59:00 – The impact of past traumatic experiences

    1:04:00 – The positives

    1:06:00 – Neurodiversity Champions

    1:10:00 – Tiny Epic Wins

    1:14:00 – “What the Flip?” moments

    1:18:00 – Wrap-Up & Where to Find Us

    ⸻

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    Lyme Disease - https://www.nhs.uk/conditions/lyme-disease/

    Alexithymia - https://www.bbc.co.uk/news/articles/cg4ky5qgrlpo

    Interoception - https://www.autism.org.uk/advice-and-guidance/professional-practice/interoception-wellbeing

    Beyond Creative Education - https://www.beyondcreativeeducation.org.uk/

    ⸻

    CONTACT US

    🌐 Website: www.neuroshambles.com

    📧 Email: hello@neuroshambles.com

    📸 Instagram: @neuroshambles

    🎵 TikTok: @neuroshamblespod

    📘 Facebook: Neuroshambles

    🧵 Threads: @neuroshambles

    ⸻

    CREDITS

    🎶 Theme music by Skilsel on Pixabay: pixabay.com
    続きを読む 一部表示
    1 時間 23 分
  • Difficulty with transitions - Part 2 | Pete Wharmby

    Difficulty with transitions - Part 2 | Pete Wharmby
    2025/11/05

    In part two of this deep dive into transitions, Mark reunites with author, trainer, and neurodiversity advocate Pete Wharmby to look at more reasons they can cause such a monumental challenge for autistic, ADHD and PDA kids (and adults).

    From difficulties pulling our kids away from screen-time and replacing a broek fridge, to the regular flashpoint of brushing teeth, Mark and Pete share real-life strategies that can make these transitions more manageable - or at the very least a bit more fun.

    ⸻

    CHAPTER TIMESTAMPS (Estimated):

    00:00 - Welcome back and reintroducing Pete Wharmby

    02:30 - Recap of what we covered in episode 45 and why transitions affect all neurodivergent kids

    06:10 - Screen time, flow states and Pete's oil tanker analogy

    16:45 - The role that monotropism plays in transitions

    27:00 - Strategies: lead-In Times, choice and routines

    36:40 - Understanding how PDA affects transitions and why it’s not just defiance

    46:00 - Strategies for control-driven transitions (e.g. declarative language)

    55:30 - Difficulty throwing stuff away: fridges, crocs and clinging to familiarity

    1:04:30 - Schools as the perfect storm of transitional triggers

    1:15:20 - The positives

    1:18:00 - Neurodiversity Champions

    1:20:40 - Tiny Epic Wins

    1:23:15 - "What the flip?" moments

    1:26:00 - Wrap-up and thanks

    ⸻

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    Pete Wharmby website - https://petewharmby.com/

    Untypical by Pete Wharmby - https://amzn.eu/d/8gGK6v4

    What I Want to Talk About, by Pete Wharmby - https://amzn.eu/d/6tY0kZQ

    What is monotropism? - https://www.autism.org.uk/advice-and-guidance/professional-practice/what-is-monotropism

    Last One Laughing - https://en.wikipedia.org/wiki/LOL:_Last_One_Laughing_UK

    Ausome Training, Cothu course - https://ausometraining.com/cothu-with-pete-wharmby

    Declarative language - https://lifeskillsadvocate.com/blog/declarative-language-for-neurodivergent-communicators/

    Anna Freud - https://www.annafreud.org/

    Georgia Pavlopoulou (LinkedIn) - https://www.linkedin.com/in/dr-georgia-pavlopoulou-651a042a

    Neuro Nook Storytime - https://www.neuronookstorytime.com/

    Bedknobs and Broomsticks - https://en.wikipedia.org/wiki/Bedknobs_and_Broomsticks

    Silksong - https://en.wikipedia.org/wiki/Hollow_Knight:_Silksong

    ⸻

    CONTACT US

    🌐 Website: www.neuroshambles.com

    📧 Email: hello@neuroshambles.com

    📸 Instagram: @neuroshambles

    🎵 TikTok: @neuroshamblespod

    📘 Facebook: Neuroshambles

    🧵 Threads: @neuroshambles

    ⸻

    CREDITS

    🎶 Theme music by Skilsel on Pixabay
    続きを読む 一部表示
    1 時間 36 分
まだレビューはありません