『NAF This Week』のカバーアート

NAF This Week

NAF This Week

著者: National Ataxia Foundation
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【Amazonプライム会員限定】今ならプレミアムプランが4か月 月額99円。

10月19日まで。※適用条件あり

NAF This Week brings you the latest news, updates, stories, and opportunities from the National Ataxia Foundation.

NAF is a nonprofit organization dedicated to accelerating the development of treatments and improving the lives of people affected by Ataxia. Each episode helps you stay connected to what’s happening across the Ataxia community, from research and advocacy to programs, events, and ways to get involved.

Learn more at www.ataxia.org.

Copyright 2026 All rights reserved.
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  • NAF This Week - Episode 2 - September 24, 2026
    2026/09/24

    Welcome to Episode 2 of NAF This Week!

    Join National Ataxia Foundation CEO Andrew Rosen for a quick look at what’s happening across NAF and the Ataxia community — from research and advocacy to programs, events, and more.

    In this episode:

    Andrew shares a firsthand recap of the 8th Annual United Against Ataxia Hill Day after a full day of meetings with members of Congress. He also breaks down the key asks NAF and FARA advocates brought to Capitol Hill on behalf of the Ataxia community and why they matter.

    Links & Resources Mentioned:

    🔗 Ataxia Advocacy: www.ataxia.org/advocacy/

    🔗 United Against Ataxia Hill Day: www.ataxia.org/advocacy/hillday/

    Stay Connected with NAF:

    Visit www.ataxia.org to learn more about Ataxia, find resources and support, get involved, and follow the latest progress in Ataxia research.

    Subscribe to our channel and join us each week for NAF This Week: nafbx.podbean.com/

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    10 分
  • NAF This Week - Episode 1 - September 18, 2026
    2026/09/18

    Welcome to Episode 1 of NAF This Week!

    Join National Ataxia Foundation CEO Andrew Rosen for a quick look at what’s happening across NAF and the Ataxia community – from research and advocacy to programs, events, and more.

    In this episode: Andrew introduces NAF This Week and shares what you can expect from the new podcast. He also highlights Walk N’ Roll events happening across the country and encourages the community to get involved. Plus, with Hill Day coming up next week, Andrew shares what advocates will be doing to raise awareness and speak up for the Ataxia community.

    Links & Resources Mentioned: 🔗Walk N’ Roll to Cure Ataxia: www.ataxia.org/walk-n-roll/ 🔗United Against Ataxia Hill Day: www.ataxia.org/advocacy/hillday/

    Stay Connected with NAF: Visit www.ataxia.org to learn more about Ataxia, find resources and support, get involved, and follow the latest progress in Ataxia research.

    Subscribe to our channel and join us each week!

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    7 分
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