『Lighting the Path: A New Concept of Hospice Care』のカバーアート

Lighting the Path: A New Concept of Hospice Care

Lighting the Path: A New Concept of Hospice Care

著者: Jerry Fenter
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【Amazonプライム会員限定】今ならプレミアムプランが4か月 月額99円。

10月19日まで。※適用条件あり
Lighting the Path is here as a guide to help anyone with a life-limiting illness have a better end of life experience. Our goal is to provide you with honest, clear, and unbiased information about hospice and palliative care.Copyright Harbor Healthcare System © 2025 衛生・健康的な生活 身体的病い・疾患
エピソード
  • Ask Better Questions to Advocate for Your Aging Parent
    2026/10/13
    How do you advocate for an aging parent while making sure their voice remains at the center of the conversation? In this episode of Lighting the Path, guest Tara Shuler explores the conversations that come with supporting a parent through the later years of life. From healthcare appointments to family decisions, Tara shares ways to clarify goals, ask purposeful questions, and keep difficult discussions focused. Drawing on her experience as a corporate trainer and personal caregiver for her mom, Tara discusses how to communicate with your parent, their healthcare team, and other people involved in their care. She encourages caregivers to begin with a clear understanding of what they hope to accomplish—and to ask questions that help everyone move toward that goal. One simple practice she recommends is reviewing appointments with your parent by asking, "What did you hear?" and then, "What do you want?" These questions create space to understand both your parent's interpretation of the conversation and their wishes moving forward. The episode also explores the role of siblings and other stakeholders. Rather than assuming you know what someone is thinking, Tara encourages asking questions to understand their perspective. She also offers tips for keeping conversations under control when emotions, competing priorities, or differing opinions threaten to pull them off course. Tara Shuler is a corporate trainer, keynote speaker, author, and founder of ConvoControl, where she teaches communication skills to sales teams, leaders, and other professionals. Her book, Parenting A Parent: Controlling the Conversation Through the Role Reversal, draws on seven years of caring for her mother and applies her conversation framework to the challenges of supporting an aging parent. Her work helps caregivers approach difficult discussions about medical care, independence, finances, and family decisions. Connect with Harbor Hospice & Beacon Hospice: Follow Harbor Hospice on Facebook. Follow Beacon Hospice on Facebook.For more information about Harbor Hospice, please visit harborhospice.comFor more information about Beacon Hospice, please visit beacon.lifeFor more information about HarborCare & BeaconCare Palliative Services, please visit myharborcare.comPlease send your questions or comments to the podcast host at jfenter@harborhcs.com.
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    30 分
  • How to Be a Better Patient Advocate for Someone You Love
    2026/09/29

    What does it mean to advocate for someone you love during a healthcare journey? In this episode of Lighting the Path, Robin Shapiro defines patient advocacy and explores how caregivers can speak up, ask questions, and support the person in their care.

    Robin and Jerry discuss how healthcare has changed over the years—and why advocacy matters more than ever. She offers practical tips for caregivers, describes signs that it may be time to bring in a professional advocate, and explains why an independent advocate is worth considering.

    For caregiver checklists, Robin recommends The Care Partner Project. HealthAdvocateX is also hosting a free advance care planning webinar on October 7; registration is available at HealthAdvocateX.org.

    • Connect with Harbor Hospice & Beacon Hospice:

      • Follow Harbor Hospice on Facebook. Follow Beacon Hospice on Facebook.
      • For more information about Harbor Hospice, please visit harborhospice.com
      • For more information about Beacon Hospice, please visit beacon.life
      • For more information about HarborCare & BeaconCare Palliative Services, please visit myharborcare.com
      • Please send your questions or comments to the podcast host at jfenter@harborhcs.com.
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    21 分
  • How to Choose a Healthcare Proxy: Questions to Ask and Conversations to Have
    2026/09/15
    Who would speak for you if you experienced a medical emergency and could not make healthcare decisions for yourself? In this episode, Robin Shapiro of Well Said Health joins us to discuss how to choose a healthcare proxy—the person you authorize to make healthcare decisions on your behalf if you lose the ability to communicate or make informed choices. Robin Shapiro is the founder of Well Said Health and a passionate advocate for helping individuals and families communicate clearly about healthcare choices. Robin explains why this is not only an issue for older adults or people with serious illness. She encourages adults to put a healthcare proxy in place when they turn 18, especially before leaving home for college. Robin offers practical guidance for selecting the right person, including the importance of choosing someone who: Understands your values, goals, and priorities Can remain calm during an emergency or emotionally difficult situation Is willing to speak up and advocate for your wishes Can communicate effectively with clinicians and family members Will honor your preferences, even if those preferences differ from their own beliefs Is available and willing to accept the responsibility The conversation also addresses an equally important question: what should you talk about after selecting a proxy? Robin shares the kinds of values, treatment preferences, fears, hopes, and quality-of-life considerations that can help a proxy make decisions with greater confidence. Naming someone is important, but having ongoing conversations with that person is what gives the appointment real meaning. For people who do not have a trusted family member or friend available to serve in this role, Robin discusses the option of hiring a professional advocate. These professionals can help represent a person's stated wishes and provide informed, independent support when healthcare decisions need to be made. Robin also recommends resources that can help individuals and families begin these often difficult—but deeply meaningful—conversations. Resources mentioned Robin Shapiro / Well Said Health: WellSaidHealth.com Free webinar: How to Create Your Own Healthcare Proxy October 7, presented through HealthAdvocateX HealthAdvocateX: HealthAdvocateX Connect with Harbor Hospice & Beacon Hospice: Follow Harbor Hospice on Facebook. Follow Beacon Hospice on Facebook.For more information about Harbor Hospice, please visit harborhospice.comFor more information about Beacon Hospice, please visit beacon.lifeFor more information about HarborCare & BeaconCare Palliative Services, please visit myharborcare.comPlease send your questions or comments to the podcast host at jfenter@harborhcs.com.
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    21 分
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