『Life's a Polyp』のカバーアート

Life's a Polyp

Life's a Polyp

著者： Jenny Jones
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 Jenny is a Rare Disease Advocate for Familial Adenomatous Polyposis (FAP) and Short Bowel Syndrome (SBS) and uses her platform of Life's a Polyp (blog, vlog, and shop) focused on raising awareness about FAP, SBS, and patient empowerment. She started the NORD FAP Research Fund in 2015 and donates profits from Life's a Polyp Shop and her FAP Children's Book - Life's a Polyp with Zeke and Katie. Her FAP related surgeries (8 total) started at age 9. She's experienced life-threatening complications resulting in medical PTSD and lived with an ileostomy for 6 years before having it reversed.Jenny Jones 社会科学
エピソード
  • Cognitive Behavioral Therapy for Chronic Pain

    Cognitive Behavioral Therapy for Chronic Pain
    2025/06/01

    Jenny shares what she learned in a CBT-CP Seminar for improving quality of life with chronic pain.
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    20 分
  • Caregiving for Mom - The Last Years

    Caregiving for Mom - The Last Years
    2025/04/10

    Jenny shares how her understanding of her mom changes when she became a caregiver to her mother and what the last years were like.
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    18 分
  • Post Concussion Syndrome

    Post Concussion Syndrome
    2024/03/28

    Jenny shares about her experience developing and living with Post Concussion Syndrome
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    17 分
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