Intimacy: Being a Human within the Context of Rare Disease
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Intimacy: Being a Human within the Context of Rare Disease
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This episode dives into the often overlooked topic of intimacy for people living with rare diseases, chronic conditions, and chronic pain. As the hosts highlight, the surge of issues such as weight gain from medications like prednisone, premature menopause from cyclophosphamide, and caregiver role reversals can all affect one's self-image and intimate life. Featuring guest expert Jessica Szymas, a licensed mental health counselor and certified sex therapist, the discussion covers the importance of understanding stress, managing trauma, and exploring the Wheel of Consent. The conversation offers practical advice, such as recognizing desires, negotiating boundaries, and utilizing techniques like the Three Minute Game to reconnect with your partner. Emphasizing the fierce urgency of reclaiming humanity and connection amidst medical struggles, this episode serves as a raw, candid guide for those who refuse to let their conditions dim their intimate lives.