『Imperfect Heart』のカバーアート

Imperfect Heart

Imperfect Heart

著者: Jeff Holden
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Imperfect Heart is a podcast designed for, hosted by and recorded with those affected by or involved with the care and support for those with the birth defect of a Myocardial Bridge. Interviews with healthcare professionals, support professionals and those navigating their way through the often challenging process of diagnosis and treatment are the focus of the content. It’s their stories that are meant to inform, educate and even entertain in an effort to insure hope for the listener that what they are experiencing is real, that they are not alone and that there is hope for relief from the varied symptoms of a Myocardial Bridge.

The host, Jeff Holden, has his own story to tell from symptom to diagnosis to treatment thus giving him insight and empathy as well as experience in the process of advocating for the patient. The program also seeks to make the healthcare industry more aware of the real symptoms of Myocardial Bridges with an aim to eliminate the gaslighting that is so prevalent around this defect and directly address the reality that Myocardial Bridges may be responsible for many more deaths from sudden cardiac arrest than previously thought. Early diagnosis and treatment could not only improve but may actually save lives when properly applied. More information can be found on the podcast website, www.myimperfectheart.com.Copyright 2025 Imperfect Heart
エクササイズ・フィットネス フィットネス・食生活・栄養 衛生・健康的な生活 身体的病い・疾患
エピソード
  • Episode 58: Provocative Testing for Myocardial Bridges and Effect on the Heart. Encore Edition.
    2025/08/14

    This is an encore episode as I believe we cannot stress the significance enough for this type of testing to confirm the effects of a myocardial bridge on the patient. The more that's known, the more likely it is that the proper course of treatment can be taken. If you missed it the first time, don't miss it this time. This is a must listen episode.

    Unlock the secrets of properly understanding and diagnosing myocardial bridges with insight from Dr. Jeffrey Fowler, a leading interventional cardiologist at University of Pittsburgh Medical Center. Our conversation promises to illuminate the often perplexing process of diagnosing these cardiac anomalies and their impact on heart function. Through the lens of minimally invasive procedures and advanced imaging techniques like coronary CT angiograms, Dr. Fowler demystifies why myocardial bridges are not always the main culprits behind chest pain and the definitive testing now being done to ascertain the significance of the myocardial bridge.

    We're going to explore the intricate world of invasive testing, as we detail the provocative testing process used to evaluate myocardial bridges, their severity and their contribution to angina, or chest pain. Dr. Fowler explains how starting with an empiric trial of medications can lead to more invasive procedures like heart catheterization if necessary. Learn about the steps of the provocative test and the role of acetylcholine in testing for endothelial dysfunction and vasospasm, with reassurances about the safety and reversibility of these tests. This episode is our first on the detail and best practice for diagnosis of the bridge through the provocative test we've heard so much about. It's meant for the education and knowledge for both patients and professionals, enhancing understanding of the nuanced approaches in relatively rare process of diagnosis.

    Celebrate the spirit of collaboration among cardiology experts as Dr. Fowler shares the necessity of communication and advice. He's consulted with many others along the way including Dr. Shaw at Yale and Dr. Tremmell at Stanford, highlighting real-world case studies like that of patient David Vollmer. Join me in this compelling narrative of breakthroughs and dedication in the realm of cardiac care, and discover how ongoing advancements promise a brighter future for patients everywhere.

    You can email Dr. Fowler directly at: fowlerja@upmc.edu

    To reach Dr. Fowler call 412-647-6000 and ask for him specifically. Or you can visit the hospital website HERE

    You can learn more about the Microvascular Network in the link HERE

    Chapter Summaries:

    (00:00) Understanding Myocardial Bridge Diagnosis Process

    Interventional cardiologist explains use of coronary CT angiogram to detect and manage myocardial bridges in chest pain cases.

    (10:04) Invasive Testing for Heart Conditions

    Diagnosing and treating myocardial bridges through coronary CTA and provocative testing, including an empiric trial of medications and invasive procedures.

    (22:05) Collaboration in Myocardial Bridge Diagnosis

    Leading cardiologists collaborate to refine best practices for treating myocardial bridges, using personalized approaches and expert insights.

    (27:47) Imaging and Diagnosis of Myocardial Bridge

    Acetylcholine, dobutamine, cold saline, and adenosine are used to assess endothelial and microvascular function in chest pain and exertional symptoms.

    (37:07) Complex Testing and Treatment Options

    Evaluating myocardial bridges using diagnostic tests to guide surgical interventions, while balancing personal wellness in a high-stakes medical career.

    (49:16) Cardiac Surgeon Discusses Myocardial Bridges

    Dr. Bonnati's unroofing procedure for David at UPMC, with insights from Dr. Fowler and upcoming perspectives from Dr. Bonatti, enriched by David's journey.

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    53 分
  • Episode 57: How Pain, Perseverance and Prayer Led to Successful Robotic Unroofing.
    2025/07/31

    What if facing a serious heart condition could be your turning point towards a more empowered life? Join us as we uncover the extraordinary journey of Teresa Raisanen, a woman who transformed challenges into triumphs. From the mysterious chest pain in 2012 to the life-changing diagnosis of a myocardial bridge in 2024, Teresa's story is one of courage, persistence, and the relentless pursuit of clarity in the face of daunting medical challenges. Discover how her determination and self-advocacy paved the way to finding the right specialists who would ultimately guide her to recovery.

    Embark on Teresa's incredible path as she navigates the labyrinth of healthcare systems, insurance hurdles, and the pressing urgency of her condition. With the compassionate expertise of Dr. Blair and the logistical support from her husband's airline benefits, Teresa's journey to Houston to meet with Dr. Danny Ramzy for specialized care, is a testament to the power of informed decision-making and resilience. The episode paints a vivid picture of the emotional and physical trials faced by patients seeking timely and effective treatment, spotlighting the critical importance of proactive advocacy in healthcare.

    As Teresa emerges from surgery, her journey doesn't end—it evolves. This episode highlights the profound impact of support systems, from family and friends to fellow patients like Gabby, illustrating the healing power of community. Teresa's recovery underscores the unique challenges and triumphs post-surgery, emphasizing the necessity of effective pain management and enduring patience. Her story is a beacon of hope, inspiring listeners to prioritize their health and embrace the possibility of recovery, no matter how formidable the journey may appear.

    If you would like to purchase the book, Imperfect Heart, click HERE

    Chapter Summaries

    (00:00) Heart Condition Diagnosis and Advocacy

    Teresa Raisanen's journey with a complex heart condition, diagnosis of myocardial bridge, self-advocacy, and finding a suitable doctor for treatment.

    (09:21) Medical Journey With Life-Changing Diagnosis

    Dr. Blair's expertise aids in identifying severe cardiac issues, while logistical challenges arise in scheduling consultations and tests.

    (22:21) Recovery and Support After Surgery

    Self-advocacy and caregiver support are crucial during medical procedures and recovery, along with effective pain management and shared experiences with fellow patients.

    (36:29) Navigating Cardiology Referrals and Treatment

    Proactive advocacy and knowledge are crucial in navigating cardiac care, including seeking out specialists and understanding conditions like endothelial dysfunction and myocardial bridging.

    (41:43) Road to Recovery and Inspiration

    Recovery from endothelial dysfunction takes patience and medication, as shown by Teresa's inspiring journey of healing and prioritizing quality of life.

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    48 分
  • Episode 56: How an Imperfect Heart Nearly Ruined a Marriage.
    2025/07/11

    This episode needs little description. Thanks to Kelly and Tank Sears for their candid and sometimes raw emotion in this conversation as they share the reality of the strain a myocardial bridge can put on a relationship, a marriage, a family. Yes, we'll cover the health portion of the surgery and Kelly's amazing recovery after a less than vacation like visit to Greece to see Dr. Kofidis, but it's the perseverance and trust that both she and her husband demonstrated in getting not only the appropriate health care but how they held it together as spouses in a truly challenging time. And that's not to mention the kids in the mix too. The strength of their love was challenged and the good news... there's a happy ending.

    Chapter Summaries

    (00:00) Uncovering a Myocardial Bridge and More

    Kelly shares her heart health journey during COVID-19, navigating medical uncertainties and challenges with her husband Tank.

    (08:22) The Battle for a Diagnosis

    A patient's struggle with persistent symptoms dismissed by medical professionals, leading to independent research and emotional toll.

    (21:23) Navigating Medical Challenges With Family

    Family's challenges with loved one's health, frustrations with American healthcare, seeking treatment abroad, and finding hope in a doctor's potential solution.

    (28:20) Family Support Through Medical Challenges

    Family decisions during a health crisis, logistics of overseas medical trip, emotional toll, importance of new experiences, involving children, and realization of decisive action.

    (41:24) Navigating Medical Challenges and Marriage

    Perseverance and communication are crucial in maintaining a strong relationship through medical challenges, as shown by a couple's experience with treatment abroad.

    (48:55) Shared Stories Finding Validation

    Shared experiences and storytelling on the podcast validate and connect listeners, bridging understanding and offering support.

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    53 分
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