Christine Boyle returns to Disability and Faith to share candidly about life as a disability mom and caregiver, focusing on home care nursing and all that comes with it.

Christine recounts both meaningful relationships and alarming experiences with nurses, emphasizing the need to set clear standards to protect the “sacred space” of your home.

She provides practical tips for managing home nursing, while also discussing the state's obligations to fulfill authorized hours. She also discusses the current realities of home care nursing: low wages, caregiver shortages, Medicaid waiver hours, agency accountability, fraud concerns, and advocacy successes (including DOJ action in Florida).

You are Invited In!

00:00 Welcome to Studio Court

01:39 Why Home Care Nursing

02:42 Serving Disability Families

05:18 Saying Goodbye to Jess

07:59 Life After School Ends

14:29 Why This Story Matters

17:48 Early Waiver Years

19:45 Running Nursing at Home

24:31 Wild Nursing Stories

35:46 When You Must Let Go

38:37 Being Clear Is Kind

40:58 Safety and Home Cameras

41:45 Home Camera Boundaries

42:38 Feedback And Courage

45:59 Keeping Great Nurses

47:11 Caregiver Shortage Reality

49:59 Emails And Documentation

51:36 Medicaid Fraud Zero Tolerance

54:54 State Compliance And Lawsuits

01:02:16 Home Expectations

01:05:22 Disability Dignity Stories

01:08:33 Guarding Your Sacred Space

01:13:37 Part the Waters Prayer

01:21:53 Church Support And Wrap Up