『HC&U』のカバーアート

HC&U

HC&U

著者: Ben and Lindsey Massengale
無料で聴く

This podcast is meant to be a resource for patients and caregivers dealing with the metabolic disorder, homocystinuria- also known as HCU. アート クッキング 衛生・健康的な生活 食品・ワイン
エピソード
  • Episode 54 with Brittany Hunter
    2026/08/27

    In the fifty fourth episode of HC&U, we interview Brittany Hunter.

    Brittany is mom to classical homocystinuria patient, Anniston. Brittany shares Anniston's story of her homocystinuria diagnosis through newborn screening and how their family has made the management of homocystinuria a normal part of their routine.

    During Lindsey's Low Pro Bitesss, we discuss low protein pasta salad.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    Anniston's Story

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

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    32 分
  • HC&U Bite Sized with Dr. Zohreh Talebizadeh
    2026/08/21

    HC&U: A Podcast about Homocystinuria and HCU Network America are proud to present a new monthly podcast series featuring quick, informational interviews with experts in the world of homocystinuria.

    In the fourth installment of HC&U Bite Sized, we talk to the Senior Director of the RareX Research Program with Global Genes, Dr. Zohreh Talebizadeh about data sharing through RareX.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

    続きを読む 一部表示
    11 分
  • Episode 53 with Patrick Lynch
    2026/07/30

    In the fifty third episode of HC&U, we interview Patrick Lynch.

    Patrick is a classical homocystinuria patient. He shares his story of his homocystinuria diagnosis at the age of 9 and some of the struggles he faced as a teenager in regards to treatment adherence. Patrick also talks about how he manages his treatment of homocystinuria and being physically active.

    During Lindsey's Low Pro Bitesss, we discuss fried cabbage.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    Patrick's Story

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u #cobalamin #severemthfr

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    24 分
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