『GOALS: An ALS United Podcast』のカバーアート

GOALS: An ALS United Podcast

GOALS: An ALS United Podcast

著者: ALS United Mid-Atlantic
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Discussing issues important to the ALS community with views from people living with ALS and those supporting the ALS cause. Topics range from research to caregiving to advocacy and fundraising. Support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.orgCopyright 2025 All rights reserved. マネジメント マネジメント・リーダーシップ 経済学
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  • Tim and Jeff Kurkjian join the ALS United Mid-Atlantic GOALS Podcast to talk ALS and Baseball
    2025/12/16

    Tim Kurkjian and his son Jeff Kurkjian are hosts of the baseball podcast "Is This a Great Game or What?" They also share a strong support for the ALS cause after their family's loss of Tim's brother Matt to ALS.

    Tim is the proud recipient of the 2022 BBWAA Career Excellence Award for his work as a baseball writer and journalist. In this episode of the ALS United Mid-Atlantic GOALS Podcast, Tim and Jeff talk about their family's history with ALS, their love of baseball, the support from the Philadelphia Phillies, and their experience at ALS United events.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    48 分
  • Communication Issues Related to ALS. GOALS Podcast with Alisa Brownlee and Amanda Cuth for ALS United Mid-Atlantic
    2025/12/09

    In this podcast episode, Alisa Brownlee and Amanda Cuth discuss the challenges and strategies related to speech therapy for individuals with ALS. They explore the impact of ALS on communication, the importance of voice preservation techniques such as voice banking and cloning, and the role of technology in enhancing communication. The conversation also covers compensatory strategies for speech therapy, emergency communication needs, and the emotional aspects of dealing with communication changes. Amanda emphasizes the need for professional guidance in navigating these challenges and highlights the advancements in communication devices and techniques.

    Alisa Brownlee and Amanda Cuth each have many years of experience addressing communication needs for people with ALS.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    38 分
  • ALS United Mid-Atlantic GOALS Podcast: Giving Tuesday 2025 with Gale Ferranto and Buona Foods
    2025/12/02

    Gale Ferranto and Buona Foods are uniting to match your donations for #GivingTuesday to ALS United Mid-Atlantic. In this GOALS Podcast, Gale discusses her mother's battle with ALS and her support for ALS care and research.

    Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

    To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

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    21 分
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