From Misdiagnosed to Advocate: How She Built a Movement for Endometriosis Patients
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From Misdiagnosed to Advocate: How She Built a Movement for Endometriosis Patients
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In this episode, Debrah shares her powerful journey from patient to advocate, including the surgery that changed her life, why she testified before the Washington State Senate, and how she built Wolf Women, a growing community and resource hub helping women navigate diagnosis, find qualified specialists, and communicate more effectively with their doctors.
We dig into the real gaps in endometriosis care: why so many women go undiagnosed for years, why period pain isn't the only red flag, how symptoms like bloating, histamine reactions, and nervous system dysfunction connect back to this disease, and what "whole person care" actually looks like: from excision surgery to pelvic floor therapy to EMDR.
We also talk about the role of AI and technology in centralizing patient information, the ethics of building an unbiased surgeon directory, and what needs to change in medical education to catch this disease earlier.
If you or someone you love is dealing with unexplained pelvic pain, chronic bloating, bladder or bowel issues, or has been told "it's all in your head," this conversation could change everything.
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