This week I sit down with Suzanne Byrne, who shares the story of her husband Jay, and the extraordinary 15-year battle with cancer that they faced together.

Jay was a singer, and over the years the illness took so much from him, including his voice after having his voice box removed. Suzanne was by his side through it all and she speaks so lovely about their partnership, their love, and what it means to watch someone you love endure so much.

We also talk about the end of Jay’s life and the importance of him having a say in how he wanted those final days to look.

This is a conversation about love, loss, dignity and a partnership that carried them through the most difficult of times.

This week I sit down with Craig Coady, a father who has faced an extraordinary amount of heartbreak and who is now fighting with everything he has for his son.

Craig speaks about his wife Della, who is living with Huntington’s disease and is now in full-time care, and their two boys, Rory and Paudie, who were both diagnosed with the rare and progressive condition Friedreich’s ataxia. Last year, Craig faced the unimaginable when 13-year-old Rory passed away as a result of the disease.

Today his 16-year-old son Paudie is living with the same condition, and Craig is campaigning for access in Ireland to Skyclarys, the first treatment for Friedreich’s ataxia, which can slow the progression of the disease.

This is a conversation about enormous loss, a father’s love, and a family who have already endured so much but above all, it’s about Craig’s determination to keep fighting for his son and for hope.

We mentioned at the end of the conversation that there is a march in Dublin this Sunday August 23rd beginning at 12 noon from the Garden of Remembrance in Dublin to Custom Quay House. If you can at all we would love you to get out and support

This week I sit down with Joe Grogan from Tuam, Co. Galway, to talk about his son Shane and a very different kind of grief, living grief.

In 2012, Shane’s life and the lives of his entire family changed in an instant when he was the victim of an unprovoked attack that left him with a severe acquired brain injury. More than a decade later, Shane requires full-time care and is unable to live the independent life that once lay ahead of him.

Joe speaks with incredible honesty about loving the son who is still here, while grieving the life that was taken from him, the future, the independence and all of the ordinary moments they thought they would have.

It’s a powerful conversation about a kind of grief we perhaps don’t talk about enough, when the person you love is still here but life will never be the same again.