How does it feel to live with Alström Syndrome?

In this episode, Melissa Crowland talks about her experience of living with Alström Syndrome and tells the story of how it has affected her life.

From the difficulties of daily life and dealing with a rare disease to emotional health, independence and planning for the future, Melissa shares a personal insight into living with Alström.

Melissa’s story shows how even though everyone might have the same condition, each individual's experience of Alström Syndrome is unique.

This episode forms part of Living with Alström: Stories, Challenges and Hope, a podcast series bringing together personal experiences, professional perspectives, research and the voices of the Alström community to raise awareness of this ultra-rare condition.

Learn More & Support

For further information about Alström Syndrome, support services and the work of Alström Syndrome UK: https://www.alstrom.org.uk/

Disclaimer

The views and experiences shared by guests are their own and are intended for awareness and educational purposes. This podcast is not a substitute for professional medical advice. If you have concerns about your health, please consult a qualified healthcare professional.

Music

Music by Scott Buckley released under CC BY 4.0 www.scottbuckley.com.au