In this episode, Haris Hamid shares with us his personal journey of living with Alström Syndrome and the experiences he has had along the way.

Using personal insights, Haris discusses how his daily life looks like when living with an ultra-rare disease. We talk about the obstacles Haris has been through in his life, how he copes with those and the importance of achieving confidence and independence at all times.

We also delve into the use of technology to support visually and hearing impaired individuals in a number of ways, ranging from communication, to gaining access to information to completing daily tasks. We discuss the benefits that technology has provided to Haris in order for him to achieve independence and keep it.

The discussion includes the topic of relationships and friends and the importance of surrounding oneself with supportive people.

In addition to the difficulties Haris describes, he speaks about his experience of resilience, embracing change and looking ahead. Through his own example, he tells us about the difficulties of coping with Alström syndrome and also the importance of hope, independence, and maximizing life experiences.

This podcast is really much more than just a story about the difficulties of coping with Alström syndrome. It is about Haris and what he experienced and what he learned and wants to pass on to other people with rare syndromes.

Find out more about Alström Syndrome UK: https://www.alstrom.org.uk/

Disclaimer

The opinions and experiences expressed by our guests are their own and are provided to raise awareness and educate listeners. They should not be taken as medical advice and do not replace consultation with a medical professional.

Music

Music by Scott Buckley released under CC BY 4.0. www.scottbuckley.com.au