Episode 2 with Ziah McKinney Taylor: Self-diagnosis, Chanting Through Labor, and Raising a Disabled Kid as a Disabled Parent
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Episode 2 with Ziah McKinney Taylor: Self-diagnosis, Chanting Through Labor, and Raising a Disabled Kid as a Disabled Parent
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Ziah McKinney Taylor spent years building a body of survival skills, and a career as a doula and patient advocate, largely without a single diagnosis to explain any of it. Then, while researching someone else's illness, she clicked on Ehlers-Danlos Syndrome and found her generations of her family staring back at her.
In this episode of the Disabled Parenthood Podcast, Ziah and I talk about a pregnancy spent unable to sit upright without help, 24 hours of chanting through labor, an under-informed doctor who told her she'd be dead if she actually the condition she'd just diagnosed herself with, and what it means to go on the journey of diagnosis with her child at the same time. Together, we get into how much of a disabled person's life is actually theirs once you subtract everything spent managing other people's comfort with their body.
Episode notes, transcript & resources on the website at disabledparenthood.com.