Episode 0: Welcome and Introduction
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著者:
Welcome to Living with Alström: Stories, Challenges and Hope.
In this introduction, I explain why I created this podcast and share my personal connection to Alström Syndrome as someone living with the condition myself.
Across the series, I explore what it means to live with Alström Syndrome through conversations with people from different parts of the community, including patients, families, healthcare professionals, researchers and those involved in support and awareness.
The series looks beyond the medical diagnosis to explore lived experience, family life, support, research, community, awareness and hope for the future.
This introduction sets the scene for the journey ahead and explains why raising awareness of Alström Syndrome matters to me personally.
Learn more about Alström Syndrome UK:
Alström Syndrome UK
Music:
Music by Scott Buckley: released under CC BY 4.0 www.scottbuckley.com.au
Disclaimer:
The views and experiences shared by guests are their own and are intended for awareness and educational purposes. This podcast is not a substitute for professional medical advice. If you have concerns about your health, please contact your healthcare professional.