Ep. 49 - You Are Not Broken by Chronic Illness
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What if being sick does not mean your body is broken, but that it is asking to be understood differently?
Dr. Karyn Shanks spent decades living with recurring injuries, fatigue, and symptoms that no one connected until she discovered she had Ehlers Danlos syndrome. That experience became part of the foundation for her book Unbroken and her belief that chronic illness requires a wider lens than simply treating individual symptoms. Karyn and Pam Feinberg-Rivkin explore what can happen when people are seen as a collection of medical problems instead of whole human beings, and why understanding the connection between body, mind, environment, relationships, and daily life can change the experience of healing.
Their conversation moves into medical self-advocacy and the importance of maintaining agency when illness makes us feel vulnerable. Karyn reflects on listening to your body, asking questions, finding the right people to support you, and recognizing that healing does not always mean fixing something. They also explore the power of human connection, being truly witnessed during suffering, and how compassion and safety can help people move through frightening medical experiences.
For anyone who has felt dismissed, misunderstood, or defined by a diagnosis, Karyn offers a different way of seeing yourself through self-awareness, compassion, and curiosity. Illness may become part of your story, but it never has to become the definition of who you are.
Looking for a practical takeaway from this conversation?
Download our complimentary companion resource, Looking Beyond the Behavior, designed to help parents and caregivers shift from asking "What's wrong with my child?" to "What might my child be communicating?" The guide explores how looking at children's emotional, behavioral, and physical health through a holistic lens can open the door to greater understanding, connection, and support.
Contact Pam Feinberg-Rivkin:
Facebook: @FeinbergCare
Instagram: @FeinbergCare
LinkedIn: Feinberg Consulting Inc
YouTube: @FeinbergConsulting8059