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DemTalks

DemTalks

著者: The Alzheimer Society of Ireland
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DemTalks, Our Stories, Our Voices, Series One. Created by The Alzheimer Society of Ireland and proudly sponsored by Hidden Hearing DemTalks, Our Stories, Our Voices is a podcast series by The Alzheimer Society of Ireland. Series One is produced by the Dementia Carers Campaign Network (DCCN) and is dedicated to amplifying the voices of family carers and supporters of people living with dementia. The DCCN is an advocacy group of people who have experience caring for or supporting someone living with dementia, and DemTalks Series One features topics such as carer identity, homecare, hearing loss and dementia, and caring in the LGBTQ+ community. The podcast is devised by Clodagh Whelan, Advocacy Manager, and Series One is hosted by Judy Williams, Advocacy, Engagement and Participation Officer at The Alzheimer Society of Ireland. Judy is responsible for the co-ordination and development of the DCCN. The Alzheimer Society of Ireland is the national leader in advocating for and providing dementia-specific supports and services. There are over 64,000 people living with dementia in Ireland and one in ten people diagnosed with dementia in Ireland is under 65. www.alzheimer.ie Helpline: 1800 341 341 www.hiddenhearing.ieThe Alzheimer Society of Ireland 2023 社会科学
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  • Respite and moving to residential care
    2024/06/16
    Participants in this episode: Triona Keane – Member of the Dementia Carers Campaign Network. Triona is originally from Cork but now lives in Dublin with her husband. Triona’s Dad, John, was diagnosed with Lewy Body Dementia in May 2022. John was cared for at home by his loving wife, his sons and his daughter, with his brothers and sister also providing support. While in hospital for something else, hospital staff deemed John unsuitable to be cared for at home and John was moved to residential care in October 2022. Triona emphasises that just because your loved one has moved to a nursing home, it does not mean your caring journey stops. New challenges arise, new issues present themselves, and the worry doesn’t stop. Carmel Geoghegan – Member of the Dementia Carers Campaign Network. Carmel has a background in community development and has been advocating for and involved in devising innovative community responses to issues since the early 1990s. Carmel became primary carer to her mum Angela in 2010. Angela received a very late diagnosis of vascular/frontal temporal dementia and Carmel cared for her mother until the end of life. This life changing experience began Carmel’s advocating for the voice of persons with a disability and the primary carer/family. She established Dementia Ireland Empowering Communities with an emphasis on education to reduce the misunderstanding attached to a diagnosis and empower those affected to voice their needs and fears and to be involved in the decisions that affect them. This advocacy work centres on the importance of including the voice of the person in all interactions relating to them. Nora Owen – former Minister for Justice. Nora Owen was a politician in Ireland for more than 20 years, starting with her election to the Dublin County Council in 1979. She was elected to the Dáil in 1981-2002 where she chaired the Parliamentary Overseas Aid Committee and vice-chaired the Foreign Affairs Committee. She also served as Spokesperson for the Opposition in several portfolios. She was appointed Deputy Leader of the Fine Gael Party in 1993-2001 and was Minister of Justice from 1994 to 1997. Nora has presented Midweek on TV3 and contributes regularly to TV and radio programmes. Nora’s husband Brian was diagnosed with vascular dementia in 2005, and Nora cared for Brian at home until he moved to residential care in 2018. Sadly, Brian passed away in 2020. Norma Sheehan – former Director of Nursing at St Joseph’s residential home in Dublin RGN; RGM; Dip. Man.; BNS; MSc Health Services Man Norma has nearly 40 years of general nursing experience, mainly in the acute sector. She worked in ICU and the Liver Transplant Unit in St Vincent’s University Hospital in Dublin, and she managed the Acute Care of the Elderly Unit in St Vincent’s for 3 years. She was Assistant Director of Nursing/Medical Nurse Manager in Wexford General Hospital for 6 years. In 2012, Norma became Director of Nursing in St Joseph’s Shankill, in Dublin, a residential home for 60 people living with dementia. After Norma’s arrival, St Joseph’s underwent a major transformation both culturally and environmentally. Moving from a traditional style, medical model nursing home into six new homes or ‘lodges’, Norma introduced a person-centred, psychosocial model of care; the Dementia Care Matters; Butterfly Model of Care. The primary focus in St Joseph’s is on quality of life and the person’s feelings and wellbeing. Norma retired in March 2021. The Alzheimer Society of Ireland Helpline: 1800 341 341 helpline@alzheimer.ie www.alzheimer.ie Hidden Hearing: 1800 882 884 www.hiddenhearing.ie Book recommended during this episode of the podcast – Dementia and Sensory Challenges by Agnes Houston. The Forget Me Nots Choir www.forgetmenots.ie
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    57 分
  • Delivery of a Diagnosis
    2023/10/25
    Participants in this episode:   Tony McIntyre – member of the Dementia Research Advisory Team member and member of the Dementia Carers Campaign Network. Tony lives in Dublin with his wife Mary. Mary was diagnosed with Alzheimer’s Disease in 2015, but Mary felt that she had the disease for at least two years before that.  Tony and Mary are passionate advocates, working to highlight the issues affecting carers and people with dementia. As members of the Dementia Research Advisory Team, Tony and Mary use their lived experience of dementia to contribute to dementia research in a Person Public Involvement (PPI) capacity. Through his considerable PPI work, and supported by The Alzheimer Society of Ireland, Tony has supported a number of research projects, presented at dementia conferences, and contributed to workshops and training. Tony is also a member of the Dementia Carers Campaign Network, and Mary is a member of the Irish Dementia Working Group, advocacy groups supported by The Alzheimer Society of Ireland (The ASI).   Alison McCarthy – member of the Dementia Research Advisory Team. Alison is from Limerick and is a family carer to her mother Mary who was diagnosed with Early-Onset Alzheimer’s in November 2014 at the age of 54. Alison currently splits her time between working in the Events sector in Dublin and her home in Limerick where her Mom is still living with her Dad. Alison began to get more involved with The ASI during the pandemic, joining the Dementia Research Advisory Team where she takes part in a variety of PPI (Person Public Involvement) research activities and consultations. Alison is a steadfast advocate for the work of The ASI and always loves getting involved in fundraising campaigns, especially the Memory Walk which she and her partner Bibek have taken part in annually since 2019.   Úna Crawford O’Brien, Actress. Úna joined the cast of Fair City twenty-five years ago as Renee Phelan. During that time, Úna has also toured the country with the plays Love Letters, Best Man, Grumpy Old Women, Menopause the Musical and Halcyon Days. Earlier this year, Úna took to the stage once more, alongside Bryan Murray in Love Letters. She also acted as Bryan’s Personal Assistant during the run of An Old Song Half Forgotten at the Peacock Theatre.   Matthew Gibb – Director, Dementia Services Information and Development Centre (DSiDC). Matthew was first appointed to the DSiDC in June 2003 as Medical Social Worker, and he took on the role as Director of the Centre in 2018. He has a professional background in Social Work practice, and a Masters degree in Social Policy and Social Work Studies from the London School of Economics. Matthew has a wealth of experience working with older people, carers, and people with sensory and physical disabilities.   www.alzheimer.ie The Alzheimer Society of Ireland Helpline: 1800 341 341   The Dementia Research Advisory Team https://alzheimer.ie/creating-change/research/ppi/   Dementia Adviser Service – The Alzheimer Society of Ireland https://alzheimer.ie/service/dementia-adviser/   Irish Dementia Working Group www.alzheimer.ie/creating-change/ways-to-have-your-voice-heard/irish-dementia-working-group-3/   Dementia Services Information and Development Centre, St James’s Hospital https://dementia.ie/   Family Carers Ireland https://familycarers.ie/   Model of Care for Dementia in Ireland https://www.hse.ie/eng/services/publications/olderpeople/model-of-care-for-dementia-in-ireland.pdf   www.hiddenhearing.ie
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    48 分
  • Hearing and Brain Health
    2023/09/21
    Participants in this episode: Dr Eithne Heffernan - member of the Dementia Carers Campaign Network (DCCN). Dr Eithne Heffernan cared for a close family member with dementia.   Eithne joined the DCCN in 2021, and has been involved in policy consultations, focus groups and presenting at conferences.  Eithne is a member of the Dementia: Understand Together Campaign Working Group, facilitated by the HSE and the National Dementia Office. She is a member of the INTERDEM Academy Management Board, which supports training and development of junior dementia researchers in Europe. Eithne is from Mayo and is a healthcare researcher. Currently, she is a Senior Research Fellow at the University of Nottingham, examining the needs of people living with co-existing dementia and hearing loss and their families. Dr Sabina Brennan – neuroscientist, psychologist, brain health expert, author, and former television actress. Dr Sabina Brennan is a prominent Irish neuroscientist, psychologist, and author. Sabina’s books include Beating Brain Fog and 100 Days to a Younger Brain, both Irish Times No1 bestsellers. Sabina presents the Super Brain podcast, where she talks to an eclectic, inspiring mix of guests and shares practical tips on transforming your everyday brain into a healthy, happy Super Brain. Dr Brennan directed a dementia research program at Trinity College Dublin for seven years and she led Brain Fit, a large-scale research study examining the relationship between brain health, lifestyle, genomics and dementia risk. Sabina represents Ireland on the Scientific and Medical Advisory Panel for Alzheimer’s Disease International and volunteers on several committees and advisory boards. She has advised the Irish Government and the All-Party Parliamentary Group on Longevity in the UK on brain health, dementia risk reduction and healthy ageing. Sarah Sheehan – Chief Audiologist at Hidden Hearing Ireland. HE Dip HAA, M.I.S.H.A.A, BSc (Hons) Project Management, BSc Engineering, MSc in Hearing, Balance & Communication​. Sarah Sheehan joined Hidden Hearing in 2018 as an audiologist and is a member of Hidden Hearing’s Learning & Development team. She is committed to providing audiology education and keeping up with current audiology trends. Sarah practised audiology for almost 12 years prior to joining Hidden Hearing, gaining experience in diagnostic audiology, irrigation & micro-suction procedures. The provision and application of aural rehabilitation is Sarah’s passion. As technology grows, Sarah ensures that Hidden Hearing is building and nurturing centres of excellence, and that the team has the competency and skills to ensure the best patient experience.  Sarah believes that audiology standards, delivery of service care, education and awareness of hearing health, and understanding the impact of hearing loss on quality of life, are expanding, and this will help reshape the way people view and address hearing loss. The Alzheimer Society of Ireland Helpline: 1800 341 341 helpline@alzheimer.ie www.alzheimer.ie Hidden Hearing: 1800 882 884 www.hiddenhearing.ie Irish Society of Hearing Aid Audiologists https://www.ishaa.ie/ http://superbrain.ie/ The Alzheimer Society of Ireland Family Carer Training www.alzheimer.ie/about-dementia/family-carer-training/ Books by Dr Sabina Brennan: 100 Days to a Younger Brain Beating Brain Fog Brain Gym: 40 workouts to boost your brain health The Neuroscience of Manifesting – due to be published in 2024 Destress Report 2017 http://www.sabinabrennan.ie/2018/06/destress/ ‘Test Your Ears at 50 Years’ National Campaign for Better Hearing www.hiddenhearing.ie World Health Organization https://www.who.int/ An important article on brain health and dementia prevention: Dementia prevention, intervention, and care: 2020 report of the Lancet Commission https://www.thelancet.com/article/S0140-6736(20)30367-6/fulltext
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    48 分
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