In this episode, we dive into Long COVID,a condition that continues to baffle experts and impact millions globally. We've brought together some special guests to help us understand more about it. Dr. Cheryl Clark will explain the science behind why Long COVID happens and why it's different for everyone. Netia McCray, who is dealing with Long COVID herself, will share what it’s like to live with these ongoing symptoms. Jacqui Lindsay will talk about how people are coming together in communities to help each other out.

Joining us to unpack the complexities of Long COVID are three distinguished guests. Dr. Cheryl Clark, a leading epidemiologist, offers a deep dive into the latest research and medical understanding of Long COVID, explaining why it affects individuals so differently. Netia McCray, a Long COVID survivor, shares her personal journey through the maze of ongoing health issues, highlighting the emotional and physical toll it takes. Jacqui Lindsay, a community organizer, discusses the grassroots movements that have sprung up to support those affected, showcasing the power of community in facing health crises.

Organizations mentioned in episode:

Boston RECOVER

Community Engagement — Boston RECOVER

Home | National Academies

Research Projects Directory – All of Us Research Hub (researchallofus.org)

Resources:

Long COVID or Post-COVID Conditions | CDC

Engaging diverse communities in health research begins with building meaningful partnerships. In the latest "Conversations with All of Us" episode, Dr. Karriem Watson, Chief Engagement Officer for the All of Us Research Program, and Destiny Harden, Clinical Research Coordinator and Pre-Doctoral Fellow at Massachusetts General Hospital, discuss the importance of meaningful community engagement, where communities are empowered to share their voice.

Cheryl McCloud speaks to members of the community, All of Us participants, and medical researchers, about how they feel about participating in health research. Their stories paint a picture that can help us understand how to keep our communities healthy.

How to get involved in health research:

• https://www.bmc.org/research-operations/participate-research
• https://www.massgeneralbrigham.org/en/research-and-innovation/participate-in-research
• https://www.bmc.org/research/participate-research-or-clinical-trials
• https://www.massgeneral.org/research/clinical-trials
• clincialtrials.gov
• JoinAllofUs.org/PodcastNE

Sources:

1. https://www.framinghamheartstudy.org/files/2023/09/75th-Anniversary-of-FHS-BU-Article.pdf
2. What clinical trial statistics tell us about the state of research today (antidote.me)
3. Newly Identified Genetic Variant Protects Against Alzheimer’s | Harvard Medical School
4. The Gene That Explains Statins’ Most Puzzling Side Effect - The Atlantic
5. People fearful of taking part in vital clinical research | ScienceDaily