Carrying the Breath Forward: A Cystic Fibrosis Story of Hope and Relentless Care
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Carrying the Breath Forward: A Cystic Fibrosis Story of Hope and Relentless Care
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In honor of Cystic Fibrosis Awareness Month this episode of In Sickness was taped in May and brought together three extraordinary voices whose lives and work intersect one of the most challenging and inspiring frontiers in rare disease: cystic fibrosis.
From the biotech lab to the clinic to the family home, this conversation explores CF through the lived experiences of:
• Mike Cloonan: CEO of Sionna Therapeutics, advancing a new generation of small molecules in development for CF
• Dr. Ahmet Uluer: Director of the Adult Cystic Fibrosis Program at Brigham and Women’s Hospital and Boston Children’s Hospital
• Bob Coughlin: Former CEO of MassBio and father of a son with CF, sharing 25 years of caregiving insight and love
Together, they paint a portrait of CF that is scientific, deeply human, and profoundly hopeful.