Brotherhood & Bravery: Josh and Jake's Hydrocephalus Story
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Brotherhood & Bravery: Josh and Jake's Hydrocephalus Story
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Today I share parts of my conversation with twin brothers, Josh and Jake. Josh has hydrocephalus and Jake doesn't. We talk about what can be challenging, what brings them joy and being brave. I also got the opportunity to speak with their mom, Emily, about things she's learned caring for a loved one with hydrocephalus.
Resources connected to today's episode:
Hydrocephalus Awareness Month
Shunt System
Complications of Shunt Systems
Shunt Revision Surgery: What to Expect During Surgery and Recovery
Shunt Malfunction: Frequently Asked Questions School and Hydrocephalus
Newly Diagnosed
Hydrocephalus Resource Library
RAISE Resilience Program
Community Networks (Support Groups)
HydrocephalusCONNECT (Peer Support Program)
WALK to End Hydrocephalus
Learn more about hydrocephalus: https://www.hydroassoc.org
Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform
Follow on Instagram: @taishaycameron, @hydroassoc