Born with SMA… already losing motor neurons: Cat's Story
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ほしい物リストの削除に失敗しました。
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Born with SMA… already losing motor neurons: Cat's Story
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ナレーター：
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著者：
at’s journey as a mother has been filled with challenges that most people can’t imagine. Her child was born like any other baby, but he was losing motor neurons every day without her knowing. What should have been a time of joy quickly became a reality of hospital visits, medical care, and uncertainty.
Despite her love and devotion, Cat had to take on the role of a nurse while missing out on precious moments of simply enjoying motherhood. Everyday life became a balance of medical appointments, monitoring her child’s health, and coping with the emotional weight of a rare condition that few understand.
Cat shares her story to shed light on the realities families living with SMA face, to show that these struggles are valid, and to create a space where parents of children with rare and severe conditions feel seen and supported.
Her journey is a reminder that you are not alone. Many families face these challenges in silence, finding strength in sharing their truth and connecting with others who understand.
Share your own story here:
https://docs.google.com/forms/d/e/1FAIpQLSduT5ncgPExhxdXYRxd-GraSB--TMSKhgijL5FwlW4F87xzaA/viewform
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