『Bleeding Disorders and Beyond』のカバーアート

Bleeding Disorders and Beyond

Bleeding Disorders and Beyond

著者: Haemophilia Foundation Australia
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Hello and welcome to Bleeding Disorders and Beyond, a podcast by Haemophilia Foundation Australia. In this series we speak to community members and health prtofessionals about living with a bleeding disorder and what’s around the corner.

To learn more about HFA, head to our website: haemophilia.org.au

Haemophilia Foundation Australia 2026
衛生・健康的な生活 身体的病い・疾患
エピソード
  • Dom on having Gene Therapy for Haemophilia A
    2026/06/22

    Dom shares his experience of receiving gene therapy treatment for haemophilia A. He talks about his life with haemophilia, before and after gene therapy. For Dom, the gene therapy wasn't a success, however he is still very positive about his experience.

    As of May 2026, gene therapy for haemophilia is currently only available in Australia through clinical trials. Gene therapy for haemophilia B is in the process of being evaluated by the Australian Government for funding to become available for Australians and we look forward to the outcome.

    Dom is Australian and received gene therapy as part of a clinical trial.

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    16 分
  • Gene Therapy: 'Ask me Anything' with Dr Michiel Coppens
    2026/05/11

    Chaired by Dr Stephanie P’ng and led by questions from the community, Dr Michiel Coppens explains what gene therapy is, how it works, and how it can be used to treat people with haemophilia.

    Dr Coppens draws on his extensive knowledge of haemophilia and experience in gene therapy – he dosed the first Dutch patient with gene therapy back in 2015 – to provide answers that are both thorough and easy to understand.

    This interview was recorded on 14 May 2024.

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    49 分
  • Steve on having gene therapy for haemophilia A
    2026/05/11

    Steve shares his experience having gene therapy for severe haemophilia A – and how it has changed his life.

    As of May 2026, gene therapy for haemophilia is currently only available in Australia through clinical trials. Gene therapy for haemophilia B is in the process of being evaluated by the Australian Government for funding to become available for Australians and we look forward to the outcome.

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    14 分
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