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BeewellwithMS podcast by Dr Agne Straukiene

BeewellwithMS podcast by Dr Agne Straukiene

著者： Dr Agne Straukiene
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【Amazonプライム会員限定】今ならプレミアムプランが4か月 月額99円。

10月19日まで。※適用条件あり
Welcome to the BeeWellWithMS Podcast, hosted by Dr. Agne Straukiene, a full-time neurologist with a special interest in Multiple Sclerosis (MS). Our mission is to empower individuals living with MS, their families, and healthcare professionals with the latest knowledge, expert insights, and practical tools to enhance brain health and overall well-being.Through engaging conversations with leading experts, inspiring personal stories, and evidence-based lifestyle strategies, we explore a wide range of topics including MS management, new treatment guidelines, mental health, lifestyle optimization, and cutting-edge research. From understanding disease-modifying therapies (DMTs) to navigating pregnancy with MS or tackling smouldering MS, we aim to make the complex simple and accessible.Whether you’re looking for professional guidance, personal motivation, or a sense of community, the BeeWellWithMS Podcast is your trusted companion on the journey toward living well with MS. Join us as we bridge the gap between science and everyday life, fostering resilience, empowerment, and hope.🎧 Listen, learn, and thrive with BeeWellWithMS!







Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support.Dr Agne Straukiene 心理学 心理学・心の健康 衛生・健康的な生活 身体的病い・疾患
エピソード
  • What Your MRI Isn’t Telling You About MS | Prof. Daniel Ontaneda

    What Your MRI Isn’t Telling You About MS | Prof. Daniel Ontaneda
    2026/09/23
    What It Reveals | Professor Daniel Ontaneda“My MRI is stable—but I don’t feel stable.”It’s a sentence we hear in clinic, and it deserves a thoughtful answer.In this BeeWellwithMS episode, I’m joined by Professor Daniel Ontaneda, neurologist and MS researcher at Cleveland Clinic, to explore what MRI can reveal—and why it doesn’t always explain everything you feel.We unpack the language of MRI reports, from lesions and “black holes” to brain atrophy. We discuss silent lesions, chronic inflammation, paramagnetic rim lesions and the central vein sign, alongside emerging imaging techniques that could help bring the scan and the lived experience of MS closer together.Daniel also shares his approach to monitoring scans, when contrast can be useful, and what excites him about 7T MRI and better spinal cord imaging.Your scan matters. So does your story.
    ⏱️ CHAPTERS00:00 Welcome:
    02:33 What actually is an MS lesion?
    04:36 Understanding T2 lesions, contrast and “black holes”
    09:02 Do black holes predict more severe MS?
    10:28 Why can new lesions appear without symptoms?
    13:23 “My MRI is stable, but I don’t feel stable”
    18:14 The biology routine MRI can miss
    19:30 Chronic inflammation and changes beyond lesions
    22:35 New imaging markers: looking deeper into MS
    24:22 Paramagnetic rim lesions and chronic activity
    26:53 The central vein sign: identifying MS lesions
    30:29 Brain atrophy: what does it really mean?
    33:17 How hydration and time of day affect brain measurements
    35:46 Brain health, lifestyle and interpreting your report
    37:52 Monitoring MRI: rebaseline scans and contrast
    40:00 How often should you have an MRI?
    42:28 Personalising monitoring and spinal cord scans
    43:28 The future: 7T MRI and sharper spinal cord imaging
    47:00 What Daniel wishes everyone understood about MRI
    48:46 Bringing your scan and your experience together
    50:54 Closing thoughts: stay curious and ask questions🎙️ Hosted by Dr Agne Straukiene
    🎙️ Guest: Professor Daniel Ontaneda, Cleveland Clinic💬 Have you ever felt that your MRI report didn’t reflect how you were feeling? Share your experience or a question below.Subscribe to BeeWellwithMS for more conversations about MS science, care and everyday life.🌐 https://www.beewellwithms.comThis conversation is for general education. MRI findings and monitoring schedules need to be interpreted with your own clinical team, taking your individual circumstances into account.#MultipleSclerosis #MRI #BeeWellwithMS

    Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support.
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    52 分
  • Assistive Technology for MS: Everyday Heroes, Wow-Tech & 7 Questions to Ask Before You Buy

    Assistive Technology for MS: Everyday Heroes, Wow-Tech & 7 Questions to Ask Before You Buy
    2026/08/23
    This episode of the BeeWellwithMS Podcast opens the “assistive technology toolbox” for people with MS, from everyday tools to specialist equipment and emerging tech, using catalog labels (established, specialist assessment, emerging/research, limited access) and emphasizing function-first choices over shopping. It highlights smartphones as a major assistive device (dictation, screen reading, magnification, captions, reminders, routines, and travel/toilet planning), mobility options like AFOs, FES, walking aids, wheelchairs and power-assist (with proper assessment and environmental adaptations), and low-tech adaptations for hands plus workplace support via Access to Work. It covers brain fog, fatigue planning, heat sensitivity and cooling, bladder diaries and planning, smart home control, and communication/AAC including voice banking. “Wow shelf” examples include the Cionic Neural Sleeve, grasp gloves, stair-climbing wheelchairs, rehab robotics/exoskeletons, eye-gaze communication, and camera-enabled glasses, ending with seven practical questions before trials or purchases.

    00:00 Assistive Tech Teaser
    01:22 Ground Rules and Labels
    03:03 Your Phone as Assistive Tech
    05:44 Mobility and Gait Support
    09:17 Hands and Work Setup
    10:43 Brain Fog and Fatigue Tools
    13:57 Heat and Bladder Planning
    15:50 Smart Home and Communication
    17:31 The Wow Shelf Tech
    21:37 Seven Questions Before Buying
    23:58 Wrap Up and Takeaways





    Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support.
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    27 分
  • Unpredictable MS Symptoms: Finding an Inner Anchor

    Unpredictable MS Symptoms: Finding an Inner Anchor
    2026/08/09
    In this BeeWellWithMS podcast episode, the host reflects on an animated infographic listing many possible MS symptoms and the responses it sparked, including the feeling that “everyone thinks I’m okay” and the idea that an unpredictable body can reveal steady inner strength. The episode focuses on how one of the hardest parts of MS can be not knowing what version of your body you’ll wake up with, especially when changes aren’t visible to others. Rather than trying to “fix” the body, the host introduces mindfulness as a way to distinguish between symptoms and the struggle built around them, meeting what is present without fighting yourself. A short guided practice invites noticing the body, approaching sensations with curiosity and kindness, choosing where attention goes, and asking, “What do you need from me today?”

    00:00 Welcome and the viral image
    01:20 The hidden reality of MS
    02:41 Mindfulness vs the struggle
    04:21 Settle in for a short practice
    07:25 Curiosity toward sensations
    08:30 Kindness and shifting attention
    10:05 Widen the lens beyond symptoms
    11:20 Ask what you need today
    13:03 Reflecting on fear vs curiosity
    14:28 Closing thanks and invitation


    Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support.
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    15 分
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