『Anti-Myelin Society Podcast』のカバーアート

Anti-Myelin Society Podcast

Anti-Myelin Society Podcast

著者: Jojo Taty Brika
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【Amazonプライム会員限定】今ならプレミアムプランが4か月 月額99円。

10月19日まで。※適用条件あり
The Anti-Myelin Society Podcast features women of color from the Black and Latino communities who have been diagnosed with Multiple Sclerosis (MS). The hosts, Jojo, Taty, and Brika (introduced as new additional co-host in season II) share their experiences of navigating motherhood and building their careers, and health challenges while living with MS. In their discussions, they address various topics, including mental health, symptoms, and more.Jojo, Taty, Brika 社会科学
エピソード
  • Smoldering MS
    2026/10/08

    Smoldering MS can continue beneath the surface, even when there are no obvious relapses or new lesions on an MRI. Jojo and Shabrika unpack what this lesser-known aspect of multiple sclerosis may mean for people whose symptoms keep changing, despite scans that appear stable. They explain smoldering, or chronic active, lesions; discuss progression independent of relapse activity (PIRA); and explore why symptoms don’t always line up neatly with MRI results. Drawing on their own experiences with MS, they talk about cognitive changes, fatigue, mobility challenges, feeling misunderstood, and the importance of advocating for yourself when you know something isn’t right. This candid conversation offers information, empathy, and a reminder that living with MS can look different for everyone. It’s not medical advice, but it may help you find new questions to bring to your healthcare team. In this episode:

    • What smoldering MS and chronic active lesions are
    • How MS may progress without an obvious relapse
    • Why a stable MRI doesn’t always reflect the full experience of symptoms
    • How cognitive changes and other invisible symptoms affect daily life
    • Why self-advocacy matters when navigating MS care
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    1 時間 5 分
  • Disability Savings Account
    2026/09/24

    Taty, Brika, and Jojo discuss ABLE savings accounts and how they may help people with disabilities protect their savings while receiving benefits. They also share honest stories about the financial challenges of living with MS, including medical bills, prescriptions, copays, and the everyday cost of staying healthy. Along the way, they bring plenty of humor, personal insight, and relatable conversations about chronic illness and financial survival.

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    34 分
  • MS Treatment Around the world
    2026/09/10

    MS care is not one-size-fits-all. Jojo, Brika, and Taty discuss what happens when treatment, cost, insurance, and access collide—and why some patients are looking beyond their own country for care.They explore the realities of living with multiple sclerosis, including diagnosis fears, plasma exchange, vision loss, insurance barriers, medical costs, stem cell treatment, and the challenges of finding care that supports a full life. The conversation is candid, informative, and filled with plenty of honest laughs along the way.If you live with MS, support someone who does, or want to better understand how healthcare systems shape treatment options, this episode offers an unfiltered look at access, affordability, early intervention, and hope.

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    52 分
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