• Episode 72 ~ National Ataxia Foundation
    2026/09/21

    In this episode, listen in to the conversation between Lori Shogren, Community Services Senior Director at the National Ataxia Foundation as she joins Katie Sale, Executive Director of the American Brain Coalition, to discuss ataxia, the challenges facing patients and families, and the importance of advocacy, education, and research in advancing care for the ataxia community.

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    23 分
  • Episode 71 ~ Wake Up Narcolepsy
    2026/09/09

    In this episode, ABC Executive Director Katie Sale speaks with Tammy Anderson, Executive Director of Wake Up Narcolepsy, about raising awareness, supporting patients and families, and advancing understanding of narcolepsy.

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    23 分
  • Episode 70 ~ CurePSP
    2026/08/18

    Katie Sale, Executive Director of the American Brain Coalition sits down with CurePSP's Jessica Shurer, Director of Clinical and Community Affairs, and Nora Wong, Associate Director of Public Policy, to discuss CurePSP's mission, the challenges facing individuals and families affected by progressive supranuclear palsy (PSP) and related neurodegenerative diseases, and the organization's work to advance research, advocacy, care, and support for the community.

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    36 分
  • Episode 69 ~ FamiliesSCN2A Foundation
    2026/07/07

    Join American Brain Coalition Executive Director Katie Sale as she sits down with Leah Schust Myers, Executive Director and Founder of the FamiliesSCN2A Foundation. Together, they discuss the Foundation's mission to advance research, support families affected by SCN2A-related disorders, and foster collaboration to improve care and accelerate progress toward new treatments.

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    27 分
  • Episode 68 ~ Tourette Association of America
    2026/06/03

    In this episode, Katie Sale, Executive Director of the American Brain Coalition, speaks with Jay Nichols, Vice President of Public Policy at the Tourette Association of America, about the importance of advocacy, public policy, and collaboration in advancing care, research, and support for individuals living with Tourette syndrome.

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    31 分
  • Episode 67 ~ Huntington's Disease Foundation
    2026/05/14

    Join Katie Sale, Executive Director of the American Brain Coalition, and Meghan Donaldson, Chief Executive Officer of the Huntington's Disease Foundation, for a conversation on advocacy, collaboration, and advancing support for the brain disease community. In recognition of Huntington's Disease Awareness Month this May, the episode highlights the importance of partnership, education, and raising awareness for individuals and families impacted by Huntington's disease.

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    37 分
  • Episode 66 ~ Dravet Syndrome Foundation
    2026/04/23

    Katie Sale, Executive Director of the American Brain Coalition, sits down with Mary Anne Meskis, CEO of the Dravet Syndrome Foundation, and Shannon Cloud, the Foundation's Patient Advocacy Director, for a conversation on the origins and impact of DSF. They discuss why the organization was founded, the critical advocacy work it leads, and the resources it provides to support patients and families affected by Dravet syndrome.

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    21 分
  • Episode 65 ~ PWN4PWN
    2026/03/25

    In this episode, ABC Executive Director Katie Sale sits down with Jane Powell, CEO & Executive Director, and Alejandro Bruner-Solas, Program Manager from PWN4PWN, for an inspiring conversation about advocacy, community, and living with narcolepsy. Together, they explore empowering individuals through peer support, workforce development, and inclusive programming, while sharing personal insights on navigating life with sleep disorders.

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    41 分