A Mother’s Fight for Her Son Living with Duchenne (DMD) | Angelina Olivera | Victortheinspiration

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A Mother’s Fight for Her Son Living with Duchenne (DMD) | Angelina Olivera | Victortheinspiration

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概要

In today’s episode of Become the Victor Podcast, I sit down with Duchenne Muscular Dystrophy advocate Angelina Olivera for a powerful conversation about caregiving, advocacy, faith, and a mother’s fight for her son. Angelina’s journey with Duchenne began long before she became a mother. After growing up alongside two brothers who lived with Duchenne muscular dystrophy and later passed away, she would eventually face the unimaginable reality of learning that her own son, Ryu, had the same diagnosis.Today, Angelina is Ryu’s full-time caregiver and a passionate voice for the Duchenne and rare disease communities. She opens up about watching her son progressively lose physical abilities, navigating anticipatory grief, raising his sisters alongside him, and finding the strength to take life one day at a time. Angelina also shares how her fight for Ryu led her all the way to Washington, D.C., where she has spoken with lawmakers and advocated for greater urgency, awareness, and access to potentially life-changing treatments for families affected by Duchenne.Learn More About Their Story:https://Victortheinspiration.com/blogs/become-the-victor-podcast/AngelinaOliveraEpisode37Connect with Angelina Olivera:Instagram: https://www.instagram.com/ryustrong_dmd/X:https://x.com/RyuStrong_DMDLatest Interviews | Become the Victor:https://youtube.com/playlist?list=PLTfKsun2o3kw&si=i6KCe4ajkNRrVN6iChapters:00:00 Growing Up with Duchenne: From Sister to Mother03:59 Taking Ryu’s Fight to Washington, D.C.07:23 Fighting for Duchenne Treatment Access09:57 What Becoming a Caregiver Taught Her17:57 How Duchenne Impacts the Entire Family20:23 The Hidden Reality of Caregiving and Grief23:50 Fighting for Ryu and Rare Disease Families34:35 What Lawmakers Need to Understand About Duchenne42:46 RyuStrong: Resilience, Advocacy and Hope49:22 Faith, Strength and Never Giving Up#BecometheVictor#AngelinaOlivera#DuchenneMuscularDystrophyBecome the Victor Podcast Website:https://Victortheinspiration.riverside.comBecome the Victor Podcast Guest Articles:https://victortheinspiration.com/blogs/become-the-victor-podcast Become the Victor Book:https://victortheinspiration.com/blogs/book-links/book-linksConnect with Me:Instagram: https://www.instagram.com/Victortheinspiration/YouTube:https://www.youtube.com/@VictortheinspirationWebsite:https://Victortheinspiration.com/My book, Become the Victor: Turning Trials into Triumph, tells my personal journey and offers guidance for anyone who feels stuck, discouraged, or unsure how to move forward. It is a reminder that “your greatest tests will become your greatest testimony.”Become the Victor Book:https://victortheinspiration.com/blogs/book-links/book-linksThe information on this podcast and the resources available are for educational and informational purposes only.

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