#92 Doing What It Takes: Advocating Through Immunotherapy and Kawasaki
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What does it look like when a family is navigating multiple complicated medical journeys?
In this episode of Don't Feed the Fear, I sit down with Natalie Grijalva to talk about her experience with her son's food allergy immunotherapy and her son's additional medical challenges related to Kawasaki disease.
Natalie started her Instagram account @createlikeamom as a space to explore and express her artistic pursuits, but motherhood led her in a different direction and she now uses the account to raise awareness about food allergies and Kawasaki.
We discuss what it takes to make treatment possible for a child when life is already complicated. We discuss the emotional and practical realities of navigating multiple medical concerns. We also talk about Kawasaki disease awareness and the importance of learning from other chronic illness communities—even when our diagnoses and experiences look different.
Many families within the food allergy community find themselves navigating their own unique combination of medical concerns. This conversation is ultimately about hope, persistence, and finding meaningful connection even though none of our stories are exactly the same.
Follow Natalie @createlikeamom and her artwork @dragonflycanvasco
Order From Food to Freedom
on Amazon: https://a.co/d/0bT0HjQi
or on bookshop.org: https://bookshop.org/p/books/from-fear-to-freedom-a-workbook-for-navigating-allergy-immunotherapy-amanda-r-desio-whitehouse/62f4d096796ed48c?ean=9798995147404&bkshp-astro=t
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Find Dr. Whitehouse:
-thefoodallergypsychologist.com
-Instagram: @thefoodallergypsychologist
-Facebook: Dr. Amanda Whitehouse, Food Allergy Anxiety Psychologist
-welcome@dramandawhitehouse.com