Living with Parkinson's can feel like standing in a room when the lights suddenly go out, while the world around you still expects you to move as if nothing has changed. That's what this episode is really about, how hard it can be to explain what's going on inside when so little of it shows on the outside, and how tiring it is to keep trying. Daniel is joined by Frank, who has lived with Parkinson's for nearly twenty years, and Frank's friend Chris, who doesn't have Parkinson's but has spent years learning what it's like to walk alongside someone who does.

This episode may mean a lot to anyone struggling to explain a disease that keeps changing, one that's often just as hard for others to understand as it is to describe. Chris talks about how he slowly got to know Frank, not by asking quick questions or assuming he understood, but by being patient, and how that opened his eyes to just how much Frank has to adapt to and manage every day. Daniel also shares an update on his own path toward DBS surgery, and would love to hear from listeners on whether that deserves its own episode, with his contact information shared at the end.

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Add your experience and suggestions to the conversation in this Parkinson's podcast. If you would like to leave Daniel a voice message and you live in the U.S., call 1-706-873-1656. Email us at parkinsonsandmepodcast@gmail.com