『What It’s Really Like to Outlive Your Life Expectancy』のカバーアート

What It’s Really Like to Outlive Your Life Expectancy

What It’s Really Like to Outlive Your Life Expectancy

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Roman Perkins was born with Hurler syndrome (MPS I), one of the rarest genetic disorders in the world. Doctors didn't expect him to live into adulthood, but today he's defied those expectations and is sharing what life is really like living with a rare disease.In this episode of the What It's Really Like podcast, Roman opens up about growing up with a life-limiting diagnosis, navigating disability, overcoming assumptions about what he's capable of, and building a life on his own terms. He also shares the realities of living with a condition most people have never heard of, the challenges he's faced, and why representation and understanding matter. Follow Roman:Instagram: https://www.instagram.com/romanperkyyy/ TikTok: https://www.tiktok.com/@romanperkyyy Learn more about your ad choices. Visit megaphone.fm/adchoices
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