『We Can't Fix What We Don't Acknowledge』のカバーアート

We Can't Fix What We Don't Acknowledge

We Can't Fix What We Don't Acknowledge

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In Episode 2, Marion and Dani continue to learn from the experiences of care providers. They welcomed Don Versluis, Educator and one of Canada's first Nurse Practitioners, to provide medical assistance in dying (MAiD) in 2016. Touching on the different attitudes towards MAiD between provinces, the one thing that remains consistent is that over 90% of those using MAiD are affluent white folks. Why? Why aren’t Indigenous people and other minorities using this option? The reasons are complex and include medical racism, systemic discrimination, and intergenerational trauma that has resulted in broken trust. As Marion says, “We can’t fix what we don't acknowledge.” And Dani reflects that it is hard to maintain hope when the questions on the way to the hospital are “Will they treat me as a human, as worthwhile?” “Will they believe my pain?", “Will they hurt me?” Dani asks how we can build bridges of connection between our systems and institutions to make healing universal? And both Don and Marion offer thoughtful and actionable suggestions. The conversation shifts to perspectives around MAiD, and Don describes it as "enacting personal autonomy, empowering someone to remain in control over how their end of life looks.” Marion asks Don about his responsibilities, which he explains are first, to adhere to safeguards and legislated processes in assuring consent, and then, to incorporate beliefs, values and meaning-making that is important to the patient. He notes that this often includes an opportunity for productive grieving, healing and resolution. Dani asks Don what advice he has for families to medically advocate for loved ones, as well as what supports are available for families left behind, feeling loss. (You can find Don's links to support services in the “resources” section of the podcast description.)All three acknowledge the privilege of being a part of someone’s end-of-life journey. And about the beauty that can be found there. But it is crucial to remember that this work is profound and deeply affecting. Don shares his learnings around self-care, which include a community of empathetic supporters, respecting his own values, and how MAiD has diminished his capacity for negativity and taught him to prioritize joy. And finally, Dani and Marion reflect on how much power there is in these conversations, in making time for critical thinking, having hard conversations, and in connecting with empathetic, compassionate and understanding people. Dani and Marion will continue to normalize these difficult conversations and hope that those of you who are caregivers and providers feel seen, heard and respected. Until next time with ever more questions, thank you for listening or watching.LINKSIsland Health Resources: https://www.islandhealth.ca/health-topics/medical-assistance-dying-maid/medical-assistance-dying-maid/bereavement-group-maidWithin that website is a link to a PDF, also attached here: https://www.islandhealth.ca/health-topics/medical-assistance-dying-maid/medical-assistance-dying-maid/bereavement-group-maid#:~:text=MAiD%20Bereavement%3A%20A%20Guide%20for%20Patients%20%26%20FamiliesMore specific to the Indigenous community, there is a Government of Canada document on Indigenous perspectives at the end of life. That resource is linked here: https://www.canada.ca/en/health-canada/programs/engagement-indigenous-perspectives-medical-assistance-dying/what-we-heard.htmlEpisode Guide0:00 – Check‑in, presence, and gratitude: Marion & Dani open Season 2 1:30 – Introducing Dr. Don Versluis & his work with MAID 2:43 – Marion’s decision to choose MAID after her sister’s death 7:22 – Don’s path into MAID practice and early system challenges 10:48 – What MAID is, in practice, and the relief of eligibility 12:09 – Pushback, hate mail, and leaving social media as a MAID provider 15:16 – Alberta’s Bill 18 and growing barriers to MAID access 17:01 – “Weaponized Christianity,” autonomy, and relief in choosing MAID 18:58 – Why 90%+ of MAID users are white: racism, access, and broken trust 21:28 – Historical and ongoing medical racism, including coerced sterilization 25:12 – Allies, queer history, and hope for systemic change 27:18 – Indian hospitals, epigenetics, and the long road to Indigenous healing 29:53 – How family disagreement can impact a MAID request 33:25 – Beauty at the end of life: apologies, “a million I love yous,” and meaning-making 37:03 – What culturally safe MAID can look like 40:01 – Narrative pedagogy, circle work, and Indigenous ways of teaching 43:35 – Going to the hospital while wondering, “Will they treat me as human?” 44:01 – How Don’s university is (and isn’t) integrating Indigenous perspectives 47:17 – Defining culturally safe MAID and inviting patients’ traditions in 48:37 – Indigenous strengths in death and dying, and why trust is still so fragile 49:47 – ...
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