In honor of Lipedema Awareness Month, this episode of Voices of Experience features advocate and patient Julie Quinn, who shares her personal journey living with lipedema—a misunderstood and often misdiagnosed condition.

Julie opens up about the emotional and physical challenges she faced before finally receiving the diagnosis, and how that moment of clarity empowered her to become an advocate for others. This episodes explores the key differences between lipedema and lymphedema, common signs and symptoms, and the importance of provider awareness and compassionate care.

Head to our website to learn more about the PFAC: https://www.tgh.org/patients-visitors/patient-and-family-advisory-council-pfac

Share your TGH Patient Experience story:
https://www.tgh.org/patients-visitors/recognition-compliments-and-stories

Follow on social media @voicesofexperiencepfac

In this special recap episode of Voices of Experience, guest host Vincent A. Lanci returns to reflect on the first half of Season 2, offering key takeaways and personal insights from Episodes 1 through 5. From the power of storytelling to the impact of high-quality, compassionate care, this conversation revisits the voices and moments that have shaped this season so far.

Catch up on the episodes featured in this recap:

🔹 Life as Kidney Transplant Donors with Michael and Debbie Lundberg
In honor of National Donate Life Month, advisors Michael and Debbie share their moving story as living kidney donors.

🔹 The Impact of Quality and High Reliability in Healthcare with Dr. Peggy Duggan and Dr. Laura Haubner
Tampa General Hospital leaders discuss how a commitment to safety and reliability drives better outcomes.

🔹 Navigating Life as NICU and Twin Parents with Justin and Kim Park
A heartfelt look at parenting through the NICU and beyond, with twin parents Justin and Kim Park.

🔹 Compassion in Healthcare with Tiffany Brown and Megan Lenahan
Inspired by Compassionomics, this episode explores how empathy and human connection improve care.

🔹 The Importance of Primary Care and How It Saved My Life with Kyle Pukylo
PFAC advisor Kyle Pukylo shares how a primary care visit led to a life-saving diagnosis.

Whether you're joining mid-season or looking to reflect on past episodes, this recap highlights the stories, themes, and voices that continue to shape a more compassionate, patient-centered healthcare experience at Tampa General Hospital.

Head to our website to learn more about the PFAC: https://www.tgh.org/patients-visitors/patient-and-family-advisory-council-pfac

Share your TGH Patient Experience story:
https://www.tgh.org/patients-visitors/recognition-compliments-and-stories

Follow on social media @voicesofexperiencepfac

In this deeply personal episode of the Voices of Experience podcast, host Amber Washington sits down with Advisor Kyle Pukylo, a dedicated Patient and Family Advisory Council (PFAC) advisor at Tampa General Hospital, who shares how a routine primary care visit turned into a life-saving encounter.

What began as a standard appointment quickly escalated when his primary care provider urged him to go to the emergency department, leading to a life-altering diagnosis that might have otherwise gone undetected. Kyle’s story powerfully illustrates the critical role of primary care in early detection, prevention, and guiding patients toward the right care at the right time.

This episode is a heartfelt reminder that primary care is more than just routine, it’s a trusted relationship that can truly save lives.

Head to our website to learn more about the PFAC: https://www.tgh.org/patients-visitors/patient-and-family-advisory-council-pfac

Share your TGH Patient Experience story:
https://www.tgh.org/patients-visitors/recognition-compliments-and-stories

Follow on social media @voicesofexperiencepfac