『Untold Stories: Life with a Severe Autoimmune Condition』のカバーアート

Untold Stories: Life with a Severe Autoimmune Condition

Untold Stories: Life with a Severe Autoimmune Condition

著者： iHeartPodcasts
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For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.

2026 iHeartMedia, Inc. © Any use of this intellectual property for text and data mining or computational analysis including as training material for artificial intelligence systems is strictly prohibited without express written consent from iHeartMedia 生物科学 科学 衛生・健康的な生活 身体的病い・疾患
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  • Allison: A Lifetime of Progress with MG

    Allison: A Lifetime of Progress with MG
    2026/10/07

    Allison Foss was diagnosed with MG at just five years old. Join Martine Hackett as Allison looks back on a lifetime with MG and the remarkable changes she’s witnessed along the way, from a growing understanding of MuSK-positive MG to advances in treatment and care that continue to shape the road forward for people living with MG today.

    See omnystudio.com/listener for privacy information.
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    26 分
  • Untold Stories is back for Season 7!

    Untold Stories is back for Season 7!
    2026/09/23

    Martine Hackett returns with a new season of Untold Stories: Life with a Severe Autoimmune Condition. This season, we’re exploring what comes after diagnosis through stories of hope, progress, and connection. From advances in research and treatment to advocacy, community, and finding new possibilities, hear how people across the rare disease community are finding their own road forward.

    See omnystudio.com/listener for privacy information.
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    1 分
  • Carly and Catherine: Hope, Uncertainty, and Clinical Trials.

    Carly and Catherine: Hope, Uncertainty, and Clinical Trials.
    2026/08/06

    Catherine, who is living with IgA nephropathy (IgAN), and Carly, a speech-language pathologist whose CIDP once left her paralyzed and dependent on a ventilator, share their experiences participating in clinical trials and the difficult decisions that came before saying yes. Join Martine Hackett as she explores how patients navigate uncertainty, weigh treatment decisions, and find hope in the possibility of helping both themselves and future generations of people living with rare diseases.

    See omnystudio.com/listener for privacy information.
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    27 分
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