『Unmasking Our Health: Hypermobility & hypermobile Ehlers-Danlos syndrome (hEDS)』のカバーアート

Unmasking Our Health: Hypermobility & hypermobile Ehlers-Danlos syndrome (hEDS)

Unmasking Our Health: Hypermobility & hypermobile Ehlers-Danlos syndrome (hEDS)

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Episode 215 with Katy Weber & Kalin JohnsonWelcome back to our new series, “Unmasking Our Health,” in which host Katy Weber teams up with medical expert Dr. Kalin Johnson, PharmD, to look beyond the neurodivergent brain and explore what it means to live in a neurodivergent body. After years of interviewing late‑diagnosed women and seeing the same patterns — chronic pain, fatigue, autoimmune issues, hormonal chaos, gut problems, “mystery” symptoms — Katy created the Unmasking Our Health series to explore the bigger questions behind neurodivergence: What if ADHD isn’t just about our brains, but about our whole bodies — and how and why is the medical system missing the full picture?In part one of a 2-part series, we unpack hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility, and why these connective tissue conditions so often show up alongside ADHD and autism. This episode focuses on the lived experience, the diagnostic gray areas, and the body-wide symptoms that can look unrelated until you understand the connective tissue thread running through them.We discuss how hypermobility is different from flexibility, why the Beighton score can miss real cases, and why symptoms like bruising, pain, dizziness, brain fog, and poor stamina often get mislabeled as “just clumsiness” or “just anxiety.”In this episode, we cover:The difference between hypermobility spectrum disorder and hypermobile EDS, including the extra diagnostic criteria for hEDS beyond joint laxityKalin explains the difference between flexibility and hypermobility using the rope-versus-bolts analogyThe Beighton score is helpful as a screening tool, but it only checks five joints and can miss people whose hypermobility shows up elsewhere, especially with ageKalin shares her diagnosis story, including years of worsening symptoms, specialist dead ends, and being told it was mental health before the physical pattern was recognizedWe discuss why ADHD and autism appear more often in hypermobile people, with possible shared genetics, connective tissue differences in the brain, autonomic nervous system dysregulation, and altered sensory processingThe connections between hEDS and POTS, orthostatic intolerance, fatigue, GI symptoms, interoception differences, mast cell issues, and inflammationCommon real-life clues like “party tricks,” joint pain in yoga, easy bruising, weak grip, poor stamina, and the feeling of being “a creaky old lady” after sitting too longWhy car rides, standing still, and long periods of upright posture can be especially hard because of blood flow, proprioception, and joint instabilityWhy some people with hEDS need more numbing medication at the dentist, and why urinary leakage, pelvic floor fatigue, and foot pain can all be part of the same connective tissue storyPractical next steps: track symptoms, document family history, protect joints and autonomic function, and look for a provider or physical therapist familiar with hEDSNote: Nothing in this episode constitutes medical advice. Always consult with your physician and pharmacist before starting, stopping, or changing any medication.Kalin’s website: kalinjohnson.comInstagram: @kalinpharmdLinks & Resources:NYT Magazine article: Inflammation Keeps Us Alive. It's Also Making Us Sick.ADDitude Magazine: Bendy Bodies, ADHD Brains: Connecting the DotsThe Beighton Scoring SystemHypermobility Screening ToolGrowing Up with Ehlers-Danlos Syndrome: 27 Telltale SignsHave a topic you want Katy and Kalin to cover? Contact us- - - - - Episode edited by E Podcast Productions- - - - -Women & ADHD coaching: www.womenandadhd.com/coaching- - - - -Work 1-on-1 with Katy: www.womenandadhd.com/katy- - - - -Order the “Hey, it’s ADHD!” course: www.womenandadhd.com/adhdcourse- - - - -Did you love this episode? Click here to pledge a one-time donation to the podcast!- - - - -If you are a woman who was diagnosed with ADHD and you’d like to apply to be a guest on this podcast, visit womenandadhd.com/podcastguest.Instagram: @womenandadhdpodcastTiktok: @womenandadhdpodcastTwitter: @womenandadhdFacebook: @womenandadhdAdvertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy
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