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The Whole Care Network

The Whole Care Network

著者: The Whole Care Network
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On The Whole Care Network, We're passionate about... Helping You Share Your Story

We believe podcasts are a fantastic way for your story to be told in your own words and in your own voice.

We believe it is through story-sharing where diversity meets the road to collaboration on a common cause.

Our common cause is supporting caregivers, their care partners, and the care team before, during, and after caregiving ends.

On The Whole Care Network, we feature a variety of shows and hosts who have a story to share, a resource to provide, and a kind word of encouragement because we believe the best information and referral for caregivers come from caregivers who have been in the trenches and understand the journey, helping us balance our four pillars of care.

Please enjoy all of our shows and show hosts!

*Views and opinions featured on the Whole Care Network are those solely of the hosts and guests and may not necessarily be those of the Whole Care Network. Views and opinions on the Whole Care Network are for information purposes only. Always check with your doctor for medical advice or your attorney for legal advice. Thank You for listening to The Whole Care Network!

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Whole Care Network, Inc
マネジメント・リーダーシップ リーダーシップ 人間関係 哲学 社会科学 経済学 衛生・健康的な生活
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  • How to Be the Best Caregiver You Can Be Without Being Perfect
    2025/07/08
    Drs. Barry Jacobs and Julia Mayer join the podcast for a great conversation about bringing your best to caregiving, reminding us that caregivers don’t have to be perfect. As authors and clinical psychologists, Barry and Julia support family caregivers, guiding them through the messiness of caring for a loved one. As a married couple, they’ve had lived experience with caring for their parents and in-laws with Alzheimer’s and dementia. Dealing with caregiving issues in their personal lives taught them invaluable lessons, which they now share with clients and readers of their books. Barry and Julia’s newest book is the “AARP Caregiver Answer Book” - Purchase your copy at caregiveranswerbook.com Find the AARP Caregiver Answer Book on the AARP website. Connect with Dr. Barry Jacobs and Dr. Julia Mayer on their website: loveandmeaning.com Read Barry’s latest blog post “My Care Receiver’s Doctors Don’t Respect My Boundaries” here. Find Dr. Barry Jacobs on social media: Facebook Twitter (X) LinkedIn Find Dr. Julia Mayer on social media: Instagram Facebook Twitter (X) LinkedIn Bluesky You can find the Approaching Death Support Kit by End of Life Educator Barbara Karnes at bkbooks.com. Find all of Barbara Karnes’ products and resources at bkbooks.com. Read Barbara’s blog at bkbooks.com. Connect with Barbara Karnes on Facebook IG LinkedIn Twitter (X) YouTube Hospice Navigation Services understands that you need unbiased, expert support to have the best end of life experience possible. If you have questions about hospice care for yourself or someone you care about, Hospice Navigation Services can help. Whether you want to connect by phone or video, you can book a FREE 30-Minute Hospice Navigation Session, or a more in-depth 60-Minute Navigation Session for $95. If you need to troubleshoot the care you’re already receiving, we’re here to answer your questions. A 60-Minute Navigation Session by video call allows up to 3 family members to get the same expert information at the same time. We believe you deserve to have good hospice care. Book your session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Social media: Facebook Twitter Instagram LinkedIn
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    57 分
  • Combat Senior Loneliness with Scott Lien
    2025/07/08

    Meet Scott Lien, a working family caregiver and member of the sandwich generation, who navigated the loss of four parents and in-laws over twelve years. His caregiving journey, combined with his extensive tech background, inspired him to co-found GrandPad, a user-friendly platform designed to keep seniors connected and engaged.


    In this episode of the Happy Healthy Caregiver podcast, Scott and I dive into practical ways families and society can combat senior isolation and loneliness. We also explore the unexpected benefits—such as reducing elder fraud and financial scams—and how fostering meaningful connections can help us all live without regrets.


    Plus, Scott shares wisdom from the “super seniors” he works with and reveals his secrets to ensuring joy in every day.


    And…stay tuned for how you can take advantage of an exclusive GrandPad offer for the HHC Community!

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    50 分
  • Moments That Matter: Poetry and Presence in Alzheimer’s Care with Marjorie Maddox
    2025/07/08

    Poet Marjorie Maddox and acquisitions editor Sheila Luna join host Marianne Sciucco to discuss the healing power of poetry, the realities of long-distance caregiving, and finding hope through the complexities of Alzheimer’s and dementia.

    Maddox’s, recent collection, Seeing Things, explores the tangled emotional landscape of dementia caregiving. The discussion examines the ways poetry can illuminate and comfort those touched by memory loss. Marjorie reads several of the poems, a gift to all .

    The conversation moves beyond the personal to the universal. Marjorie shares that many poems in Seeing Things draw on her caregiving experiences for her mother, who lived with dementia, as well as her supportive role with her father-in-law—both journeys complicated by long distance and pandemic separation. As Marjorie admits, “You do feel so isolated when you’re going through it,” but the overlap in experience and shared vulnerabilities make poetry a communal space for catharsis. Poems in the collection touch not just on family memories but also larger societal losses—mass shootings and cave rescues—drawing lines between personal and collective grieving.

    Marianne and Marjorie bring up a topic rarely discussed: the fractured roles in family caregiving, particularly for long-distance caregivers. Marjorie, based in Pennsylvania, supported her mother by daily phone calls and periodic visits, while her sister managed in-person care in Phoenix. Meanwhile, her brother handled the finances. These divisions, while pragmatic, often go unrecognized, and both the emotional and practical burdens can be immense.

    The episode closes on the essential role of poetry—and storytelling—in chronicling caregiving journeys and connecting with others who walk a similar path. Whether it’s through a poem, a book, advocacy, or acts of compassionate service, these stories, hard-won and deeply personal, help others feel less alone. As Marjorie shares: “Being there for those little moments…even when you don’t feel like you’re doing anything, just holding someone’s hand… still does a lot.” And, perhaps, reading or writing poetry about those moments offers a light, a “slice of joy,” for a world too often shaped by loss.

    After the Podcast

    Purchase Seeing Things

    Learn about the Moderators

    Marianne Sciucco

    Sheila Luna

    About the Podcast

    AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.

    We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias.

    To sustain our efforts please donate here.

    Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.

    Thanks for listening.

    We are a Whole Care Network Featured Podcast

    Proud to be on The Health Podcast Network

    Find us on The World Podcast Network and babyboomer.org

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    1 時間 4 分

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