The Unexpected Diagnosis: STXBP1 Disorders Awareness with Ali Irwin
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The Unexpected Diagnosis: STXBP1 Disorders Awareness with Ali Irwin
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This week, I'm joined by one of my clients and favorite people, Ali Irwin, to talk about her journey of becoming a mom to a child with developmental differences. We discuss the process of discovering her son's diagnosis and how that led her to help others learn more about it as well. Ali shares her insights into STXBP1, a rare genetic condition that's currently driving new research, while also providing valuable advice for anyone navigating life with a loved one who has special needs.
For more information on STXBP1 Disorders, visit stxbp1disorders.org and to donate through Jam's portal visit, give.stxbp1disorders.org.
Thank you for listening, remember to write a review if you enjoyed!
To watch, please visit YouTube.com/kathaleanarodriguez.
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