『The Roadmap to Rare』のカバーアート

The Roadmap to Rare

The Roadmap to Rare

著者: CSNK2A1 Foundation Podcast
無料で聴く

今ならプレミアムプランが3カ月 月額99円

2026年5月12日まで。4か月目以降は月額1,500円で自動更新します。

概要

This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research. This is our rare disease roadmap.


Every rare disease journey is different, but no family should have to navigate it alone.


On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between.


Together, these conversations shine a light on the experiences that unite the rare disease community: resilience, determination, and hope for the future.

© 2026 The Roadmap to Rare
エピソード
  • Trailer: Roadmap to Rare
    2026/04/19

    This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research.

    On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between.

    Subscribe wherever you get your podcasts so you can be the first to hear Episode 1 when it drops!

    続きを読む 一部表示
    1 分
まだレビューはありません