The Powerful Impact of the IBD Community Featuring Katie Neu
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Episode transcript and more information at: https://bit.ly/AIBD202
Katie Neu and Amber Tresca talk over the results of the IBD Social Circle white paper, "The Power of Community in Inflammatory Bowel Disease." A survey of more than 500 patients puts a spotlight on the ways IBD affects body image, relationships, intimacy, and mental health. Amber and Katie discuss masking symptoms, the difficulties of working a corporate job, and why having community is critical. Chapters- 00:05 — Host Amber Tresca introduces the podcast and her guest, Katie Neu, who lives with Crohn's disease.
- 01:25 — Amber and Katie discuss the IBD Social Circle, a community for patients, caregivers, and healthcare professionals.
- 04:25 — The conversation turns to the experience of "faking being well" to manage social and professional expectations with an invisible illness.
- 10:17 — Katie shares her experiences with the stigma surrounding IBD, from high school and college to the workplace.
- 13:59 — The discussion focuses on the significant barriers to maintaining a career while living with IBD, including needing accommodations.
- 23:20 — Amber and Katie discuss the impact of IBD on body image, dating, and intimate relationships.
- 31:26 — The hosts talk about why people hesitate to join support groups and the mental health benefits of finding community.
- 37:08 — Katie shares where listeners can find her online, including her Instagram and Substack, to connect and learn more.
The IBD Social Circle White Paper: The power of community in inflammatory bowel disease
Find Katie Neu of Badass With a Bad Ass at:
- Instagram: @badass.w.a.bad.ass
- LinkedIn: @badasswithabadass
Find Amber J Tresca at:
- AboutIBD.com: About IBD
- Verywell Health: Verywell Health
- Facebook: @aboutIBD
- Twitter: @aboutIBD
- Pinterest: @aboutibd
- Instagram: @about_IBD
- YouTube: @AboutIBD
- Threads: @about_ibd
Find Mac Cooney (mix, sound design, and theme music) at:
- Facebook: @maccooneycomposer
- Instagram: @maccooneycomposer
- YouTube: @MacCooneyComposer
- Web: Cooney Studio
- Theme music, IBD Dance Party, is from ©Cooney Studio.
These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
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