In this deeply moving episode of the Digital Legacy Podcast, Niki Weiss sits down with Jonathan Cottor to discuss the incredible life and digital legacy of his son, Ryan. Diagnosed with spinal muscular atrophy at eight months old and given only until his second birthday to live, Ryan defied the odds and lived until he was seventeen and a half. As an avid gamer, tech nerd, and YouTuber, Ryan built a vibrant digital world that has long outlasted his physical life.

Jonathan shares how he navigates grief by revisiting Ryan's YouTube channel to hear his voice, and by working daily on the custom gaming computer they built together. This episode explores the vital, yet often overlooked, intersection of pediatric palliative care and digital legacy preparation.

In this episode, we discuss:

Ryan’s Tech Journey: How a teenager living with a rare genetic disease embraced technology as an early adopter, from using an iPhone on his wheelchair tray to exploring virtual reality.

The Comfort of Digital Footprints: Why Jonathan cherishes Ryan’s online presence as a way to stay connected, and how Ryan's older brother still uses his old gaming accounts today.

Managing Digital Assets: The real-world struggles of handling a loved one's passwords and locked gaming accounts after they pass away.

Actionable Steps: The critical importance of setting up features like the Apple iPhone "Legacy Contact" to save your family from administrative headaches.