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The “extra flexible” kid is often celebrated, not evaluated and that can be the start of a long road of unexplained injuries, chronic pain, and being told it’s “just growing pains.” I’m joined by Dr. Sarah Cohen Solomon, a pediatric specialist in hypermobile Ehlers-Danlos syndrome (hEDS) who brings something rare to the table: deep clinical expertise plus lived experience of hypermobility, pelvic pain, and years of dismissal.

We get clear on what hypermobility is (and what it isn’t), why hEDS diagnosis is still heavily dependent on history and exam, and how treating it like a single sore joint misses the real problem. Dr. Solomon explains why management is the right framework, what safe physical therapy for hypermobility should prioritize, and how proprioception and body awareness can reduce injury cascades over time. We also talk mobility aids, why accessibility is not failure, and the one hands-on technique she strongly warns against: rapid high-velocity neck adjustment.

From there, we shift to kids and teens. We walk through early signs parents and pediatricians may overlook, including persistent pain, fatigue after activity, GI issues like constipation or nausea, dizziness with standing, frequent ankle sprains, and recurrent nursemaid’s elbow. We also cover bruising, how it can be misunderstood in pediatrics, and why careful documentation protects families. Finally, we dig into advocacy and medical trauma: how to ask better questions, how to avoid the “doctor shopping” trap, and why being believed is a medical intervention all by itself. We close with emerging research on the overlap between endometriosis and EDS, including striking pelvic pain rates, plus a preview of part two on neurodivergence and practical support tools.

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