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I sit down to talk with LaShonda, a mom of teen daughter Camille who was diagnosed with hydrocephalus at ten years old. We discuss their family's experience receiving the diagnosis, school experiences, advocacy and the challenges of supporting independence in a teenager living with a complex medical condition like hydrocephalus.

National Conference on Hydrocephalus, HA CONNECT

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Hydrocephalus in Infants and Children

Congenital Hydrocephalus: Dandy-Walker syndrome

Headaches and Hydrocephalus

Shunt Systems

School and Hydrocephalus

Health Challenges and School

Shunt Revision Surgery: What to Expect During Surgery and Recovery

Exercise and Hydrocephalus: Stay Safe and Active

Staying Active and Hydrocephalus: Consensus Statements on Physical Activities

Teachers' Guide

How to Explain Hydrocephalus to Your Teachers and Friends

Middle School with Hydrocephalus: Smart Preparation

Individualized Education Program (IEP): Communication Skills for Parents

Helping Teens Navigate Social Dynamics and Build Confidence

High School and Hydrocephalus

Complications of a Shunt System

Understanding a Shuntogram (Shunt Patency Study)

Traveling with Hydrocephalus

Search HA's Hydrocephalus Resource Library

Hydrocephalus Resources

Community Networks (Support Groups)

WALK to End Hydrocephalus

Peer Support, HydrocephalusCONNECT

The Hydrocephalus Association's RAISE Resilience Program

Learn more about hydrocephalus: https://www.hydroassoc.org
Request a Hydro Hero shoutout on the show: https://bit.ly/hydroheroform

Follow on Instagram: @taishaycameron, @hydroassoc