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We’ve discussed FDA barriers to clozapine and side effects of all antipsychotics. Tonight we’ll zero in on Risperdal its producer, Johnson and Johnson, and the FDA.

First, we’d like to say that for those listeners who are benefitting from Risperdal, the best antipsychotic is one that’s working for you. We’ll be talking about people for whom it’s not working so well.

Our guest for this discussion is Gardiner Harris, author of the NYT bestselling book “No More Tears: The Dark Secrets of Johnson and Johnson.” Mr. Harris, a Yale graduate, is a freelance investigative journalist who was previously an reporter for the WSJ and NYT covering public health and the pharmaceutical industry.

Most book chapters are exposes of trusted Johnson and Johnson products, from Baby Powder to cancer drugs, and are getting media attention, but we shine a light on the section about Risperdal.

Questions:

1. First let’s talk about Risperdal benefit. Tell us about efficacy studies, including the CATIE trial and what they showed about Risperdal. (Dr. Jeffrey Lieberman of Columbia University who led CATIE was a recent guest).
2. How do atypicals compare in price to older drugs like Haldol?
3. What role did J& J and the FDA play in selling them to cash-strapped states?
4. What are state budget trade-offs?
5. What role did NAMI play?
6. In this podcast, we mostly focus on adults with schizophrenia and psychosis-spectrum illnesses, but briefly, what was the off-label market (seniors and kids) for Risperdal and why did it take over sales?
7. What role did psychiatrists play?
8. Please talk about gynecomastia. (breasts, lactation)
9. How did whistleblowers and lawyers help to change J & J practices? Why were no executives convicted?
10. Do you have advice for consumers who seek the best medication for themselves or their loved ones?

Links:

book: https://www.amazon.com/No-More-Tears-Secrets-Johnson/dp/0593229878/ref=tmm_pap_swatch_0

author: https://gardinerharris.com/

CMS website/Physicians Payment Sunshine act:

https://openpaymentsdata.cms.gov/

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Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

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KETO has been in the news - with RFK Jr. claiming it can “cure” schizophrenia.

We have questions and concerns - so we brought in an expert .

Guest:

Dr. Matt Bernstein is a highly respected clinical psychiatrist and a leading voice in metabolic psychiatry, with 25 years of experience helping individuals achieve full mental health and functional recovery.

He also serves as chief medical officer at Ellenhorn, developing community-based strategies to optimize mental health.

For the past five years, Dr. Bernstein has focused on metabolic psychiatry, first in his private practice, and then at Ellenhorn.

Links:

www.accordmh.com

www.linkedin.com/in/mattbernsteinmd

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Mindy and her book: https://mindygreiling.com/

Randye and her book: https://randyekaye.com/

Miriam and her book: https://www.miriam-feldman.com/

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Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

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Guest:Deb Bushong, MS, LPC-S - a licensed therapist for over 20 years.

"Conversations Therapy is focused on the therapeutic work that helps develop youth and young adults who are in the early parts of their journey of living with Psychosis. I offer supports of various kinds for the clients but also support and psychoeducation for the parents, family members, and support systems. The goal is to move these young people towards living a recovery-oriented, fulfilling life!"

We ask questions (and push back a bit on “psychosis can be a gift”) - and share listener questions as well.

Conversations Therapy & Supervision

(469) 727-TALK {call or text}

https://www.conversationstherapy.org

https://linktr.ee/deb_bushong

NAMI Ask the Expert Webinar:

https://www.nami.org/namis-ask-the-expert/nami-ask-the-expert-roles-in-recovery-part-2-parents/

Randye's substack:

https://randyekaye.substack.com/

1. My daughter thinks we are not her parents, just friends. Is this considered psychosis?
2. Our LO was diagnosed with schizophrenia 2 years ago. He has been so afraid to begin running again for fear the voices will get loud and tell him to stop. Do you have any advice to give him the courage to try the one thing he absolutely loved doing?
3. Advice for a recreation therapist in state hospital. What are the best groups and topics to offer to patients going through the forensic/civil system to prevent readmission/relapse?
4. What to say and not to say to a loved one when they are in psychosis, especially when they cannot recognize that they are having hallucinations.
5. How to help a LO from miles away, while they are in psychosis.
6. -My son laughs a lot and very hearty laughs. But whenever we ask him if he would like to share what the joke is or what’s funny. He says no it’s nothing.Please ask her if she knows if they ever share that information with anyone ? It’s been over 20 years and he still won’t reveal anything.
7. What is the difference between psychosis and delusions? And how long can they last? Untreated… this seems to be a major obstacle to getting treatment.
8. Susan Inman - comment (author of After Her Brain Broke) -An under researched approach is having professionally facilitated, long term, group based psychoeducation about psychotic disorders. My daughter and her friends for the last twenty years had this in a program that no longer exists. I think part of it power was when they saw others in the group who were clearly psychot

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Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman