『Rayana’s Voice: A Rett Syndrome Journey”』のカバーアート

Rayana’s Voice: A Rett Syndrome Journey”

Rayana’s Voice: A Rett Syndrome Journey”

著者: Tashana and Pierre Dees
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Rayana’s Voice: A Rett Syndrome Journey
Where Care Meets Science & Stories




© 2025 Rayana’s Voice: A Rett Syndrome Journey”
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  • "Through My Sister's Eyes" : A Sibling's Perspective on Disability and Strength
    2025/10/25

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    In this special episode of Rayana’s Voice, I sit down with my younger sister — the youngest in our family — to explore what it’s really like growing up with an older sister who has a disability. We’ll talk about early memories, everyday life, how our perspectives were shaped, and what siblinghood means in this context. We’ll also weave in timely news and policy updates around disability, caregiving, health coverage, and inclusion worldwide.

    Support the show

    I would like to thank the following people because without them, this wouldn’t be possible my lovely daughter Rayana -follow her on Facebook, insta, TikTok, threads, and Linkeden- Look for RAYANASVOICE

    Thank you to Boiler Room Entertainment of Arizona for these podcasts recordings. If you would like to enquire, please email info@boilerroomentaz.com

    Email us if you would like to be apart of an episode email us @ rayanasvoice@gmail.com or have feedback/review for discussion

    I would also like to also give thanks to one of my childhood friends- Tawfig Jabbar from little ole Xenia! He is the one who suggested this podcast, thank you for being the messenger!

    Thank you all for listening

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    28 分
  • Breaking Barriers-Accessible Healthcare for Special Needs
    2025/10/15

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    🎙️ Episode 3 – Breaking Barriers: Accessible Healthcare for Special Needs


    In this episode, host Tashana Dees, founder of Rayana’s Voice Podcast and New Birth Diagnostics Laboratory, explores the systemic barriers that families of individuals with Rett syndrome and other developmental disabilities face in accessing healthcare.


    Drawing on her experiences raising her daughter Rayana, Tashana sheds light on what “accessible care” truly means — from obtaining timely diagnostic testing to navigating Medicaid programs, transportation challenges, and the shortage of providers who understand complex neurological disorders.


    💜 Key Highlights:


    • Why accessibility goes beyond physical ramps and parking spaces
    • The need for inclusive healthcare education for providers
    • How mobile laboratory and diagnostic services can close gaps in care
    • The role of advocacy, awareness, and policy reform in improving healthcare equity



    This episode encourages caregivers, clinicians, and advocates to rethink how we define accessibility — and to work collectively toward a healthcare system that honors the unique needs of every individual.


    ✨ Connect & Support:


    • Join our community: skool.com/RAYANA’S-voice-pod
    • Partner or sponsor: 📧 rayanasvoice@gmail.com
    • Learn more about our mission at New Birth Diagnostics Laboratory



    🩺 Rayana’s Voice Podcast © 2025 | Empowering Every Voice from Day One


    Support the show

    I would like to thank the following people because without them, this wouldn’t be possible my lovely daughter Rayana -follow her on Facebook, insta, TikTok, threads, and Linkeden- Look for RAYANASVOICE

    Thank you to Boiler Room Entertainment of Arizona for these podcasts recordings. If you would like to enquire, please email info@boilerroomentaz.com

    Email us if you would like to be apart of an episode email us @ rayanasvoice@gmail.com or have feedback/review for discussion

    I would also like to also give thanks to one of my childhood friends- Tawfig Jabbar from little ole Xenia! He is the one who suggested this podcast, thank you for being the messenger!

    Thank you all for listening

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    23 分
  • Rett 101: What Families Should Know
    2025/10/08

    Send us a text

    In this heartfelt and empowering episode of Rayana's Voice: A Rett Syndrome Journey, host Tashana Dees opens up about what families need to know after receiving a Rett Syndrome diagnosis.

    Through her personal experience as Rayana's mom, Tashana breaks down the basics of Rett in simple, compassionate language- what it means, how it impacts everyday life, and what hope looks like for the future.

    This episode blends real-life insight, encouragement, and education, reminding families that Rett Syndrome may change routines, but it can't silence love, joy, or connection.

    Support the show

    I would like to thank the following people because without them, this wouldn’t be possible my lovely daughter Rayana -follow her on Facebook, insta, TikTok, threads, and Linkeden- Look for RAYANASVOICE

    Thank you to Boiler Room Entertainment of Arizona for these podcasts recordings. If you would like to enquire, please email info@boilerroomentaz.com

    Email us if you would like to be apart of an episode email us @ rayanasvoice@gmail.com or have feedback/review for discussion

    I would also like to also give thanks to one of my childhood friends- Tawfig Jabbar from little ole Xenia! He is the one who suggested this podcast, thank you for being the messenger!

    Thank you all for listening

    続きを読む 一部表示
    25 分
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