
Rare Cancers - Limited Treatments, Limited Research, Tons of Advocacy
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In this episode we will focus on rare cancers. These are the step children of cancer. They get fewer dollars for research, patients may have more limited treatment options and the challenges for advocates to raise awareness and build support can be daunting. Let’s talk about the unique experience of people with rare cancers.
For this episode I am joined by Jim Palma and John Hopper. Jim and John are colleagues and friends, and are both leaders in the rare cancer community, leading research and advocacy efforts, bringing focus and improved outcomes for this underserved group patients. Jim Palma is the Executive Director of the Target Cancer Foundation. Jim joined TargetCancer in 2010, Jim has overseen its growth from a small start-up to a nationally recognized foundation supporting comprehensive rare cancer research programs and patient support services. Jim is a member of the Board of Directors of the National Organization for Rare Disorders (NORD), and is a founding Co-Chair of the NORD Rare Cancers Coalition.
In addition, Jim is a Steering Committee member at the GI Cancers Alliance and the Global Cholangiocarcinoma Alliance.